The Silicon Valley model that privacy can be negotiated person by person rather as a whole with full externalities: networked, without practical obscurity, searchable, mass, permanent etc, is 100% wrong. (Fitness company opened up data and unearthed secret US bases. ¯\_(ツ)_/¯ )https://twitter.com/Paulmd199/status/957795392933961728 …
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"Check your privacy settings"—which is your standard Silicon Valley response—is no response. In the digital age, data privacy simply cannot be negotiated and consented to at the individual level. (Let alone via wrap-around, click-through, as-is legalese).https://twitter.com/LizSly/status/957743336818954240 …
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The point of life? To win by using machine learning? Doubtful at best.
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Couldn’t agree more. Do you have recommendations for what we can do instead? In our work we’re often trying to use datasets for shared social benefit, but all of the same challenges arise despite good faith (no one can say how that data *could* be used in the future)
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But isn't "future risks are unknown; reidentification could be possible" a consent form? Better inform the participants/users than claim something wrong. This is what we did for research http://open-brain-consent.readthedocs.io/en/latest/ultimate.html …
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It's sort of like the new DNA in that sense.
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