Does something like IRB apply to purely online opt-in research involving test subjects who may be asked to try physical, non-informational things offline?
Like say a survey that asks "take your pulse, run for five minutes, then take pulse again, and enter both on this form"?
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Here is a useful review of general IRB guidelines complete w/ a link to decision tree calculator at the bottom FWIW researchcompliance.iu.edu/hso/hs_level_r
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And another from Stanford - note the 'pilot project' exemption from qualification as research humansubjects.stanford.edu/research/docum
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Has this regulatory regime been really tested against things like the quantified self community collaboratively experimenting on themselves? Feels like this is all almost entirely institution-targeted and the DIY world/indie scholarship world falls through the cracks
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Agreed. IRB is, as it's name implies, an inst. control/compliance mechanism. Although it is a fed. mandate created after the National Research Act passed and is governed by the HHS, it seems to be primarily limited (focused?) to formal insts. -esp those who pursue fed. funding 1/
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