VASCERN

@vascern

Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases

Vrijeme pridruživanja: veljača 2017.

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  1. Prikvačeni tweet
    31. lis 2019.
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  2. proslijedio/la je Tweet
    6. velj
    , , i još njih 7
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  3. 6. velj

    New video in presents the - their activities, structure and how they interact with the ! Example of into national system!

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  4. proslijedio/la je Tweet
    6. velj

    Today in Brussels to discuss guidelines development within ERNs

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  5. proslijedio/la je Tweet
    5. velj

    Dr Pia Ostergaard opening the meeting - summarising the overall project aims and introducing the team members that will bring it all together .Me - discussing all things ICG Lymphography, Dr Haegerling showing us amazing prelim 3D biopsy results

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  6. proslijedio/la je Tweet

    Big news: We’re funding 30 patient-led organization to support their launch of research networks in their search for treatment options

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  7. proslijedio/la je Tweet
    4. velj

    Customise your Twitter profile picture with the Twibbon to show your support for people living with a rare disease around the world >>

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  8. proslijedio/la je Tweet
    4. velj

    Don’t miss the chance to make your voice heard! Have your say on the healthcare you receive for your rare disease via the new H-CARE Survey. Survey closes on 29 February:

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  9. proslijedio/la je Tweet
    4. velj

    🔊New opportunity from ❗️‼️ Research mobility & training workshops for students/ young medical doctors/ researchers. Learn more here:

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  10. 4. velj
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  11. proslijedio/la je Tweet
    4. velj

    Results from the latest Voices survey -According to patients, the main risks associated with data sharing are:

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  12. proslijedio/la je Tweet
    31. sij
    Odgovor korisnicima i sljedećem broju korisnika:

    It is a great pleasure to work with Eline and the patient association

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  13. 3. velj
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  14. proslijedio/la je Tweet
    2. velj
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  15. proslijedio/la je Tweet
    31. sij

    1/3 February is and we can't wait to get it going! Here's what you can do: First, download your favorite graphics and use them however you like to tell your story and encourage others to spread the word.

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  16. proslijedio/la je Tweet
    30. sij

    ¡Ya están aquí los 3️⃣ programas‼️ 💞 MUCHÍSIMAS GRACIAS 💞 A todos los que hacéis posible este 💪Socios, Voluntarios, Monitores, Dra.Montañés, Dra.Sanz, Dra.Marta Cabranes,,, 👏 Nos vemos en ⏳

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  17. 31. sij
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  18. 31. sij
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  19. proslijedio/la je Tweet
    31. sij

    Each type of is defined as a distinct problem in connective tissue: what the body uses to provide strength & elasticity. Connective tissue is found throughout the body, and Ehlers-Danlos syndromes are structural problems.

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  20. proslijedio/la je Tweet
    28. sij

    A patient journey is different for every patient. I am proud to tell mine because I have learned so much, reduced my leg, improved my life, met so many amazing patients, clinicians and advocates and finally happy to be part of the community❤

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  21. 30. sij
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