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Our Founder/CEO, Maria Picone will be teaming up with our Citizen Scientist Award Winner, Lara Pullen to speak at
#DataDIY today! Register for the live stream at the link below. https://datadiyworkshop4.mediasiteservices.com/?handler=Register …#DataDIY#raredisease#CareAboutRARE#Pharma#BioPharma#PharmaceuticalsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Our Annual Letter looks back on 2019 with gratitude while looking forward to 2020 with excitement. It also contains the announcement of our first-ever Citizen Scientist Award! https://trend.community/news/trends-annual-letter/ …
#RareDisease#DrugDiscovery#HealthCare#MEDTECH#Pharma#BioPharmapic.twitter.com/LdVpgRogTM
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"TSC community members can download the new label to show insurers the broadened approved age group since the label won’t be immediately available in Sabril’s package insert." http://tsalliance.org/news/fda-approves-sabril-label-expansion-patients-2-to-10-years-old/ …
#RareDisease#DrugDiscovery#HealthCare#MEDTECH#Pharma#BioPharmaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Learn about exciting changes regarding expanded access to medications that have the power to improve lives at the third annual Expanded Access Summit in Washington, DC starting today!https://easummit.net/
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Our founder and CEO will be speaking on a panel
@GlobalGenes Genes Data DIY in Houston Monday, February 3rd through Wednesday, February 5th, 2020. Register to learn more about this exciting event.https://globalgenes.org/event/data-diy/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Our newest Community Voice Report involved some incredible people, and we are pleased to share our CVR on GM2, GM1, and Canavan. https://trend.community/news/trend-releases-new-community-voice-report-on …
#RareDisease#DrugDiscovery#HealthCare#MEDTECH#Pharma#BioPharma#PharmaceuticalsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
TREND Community proslijedio/la je Tweet
After 20 years of telling other people’s stories, I decided to tell mine. Thank you
@J2Novack, my#hcldr friends, @JoeBabaian @Colin_Hung @MariahWrites @KarenATXMH and @savvy_coop for helping me find my voice https://tinyurl.com/y7zcot7q pic.twitter.com/0yRTXXZ8N7
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Excited to attend this event hosted by Horizon Therapeutics featuring expert discussion on innovative approaches to addressing the challenges to research and drug development in rare diseases.
@HorizonNews https://www.1776.vc/events/redefining-innovation-in-rare-disease-drug-development/ …#RareDisease#DrugDiscovery#Pharma#BioPharmaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We are looking forward to attending the
@Expanded_Access Summit, which features some incredible speakers who are sure to bring a wealth of knowledge to every panel and lecture. Register today! https://easummit.net#expandedaccess#RareDisease#DrugDiscovery#HealthCareHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Looking forward to
#RareDC2020 and looking back at one of the most important legislative victories the rare disease community has ever had.@RDLA https://trend.community/news/looking-forward-to-rare-disease-week-on-capitol-hill/ …#RareDisease#Pharmaceuticals#rareadvocates#capitolhill#everyvoicemattersHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Here at
#JPM2020 let's talk patient experience data! We have it!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We here a lot these days about the FDA's interest in the patient voice—drop in on this webinar to learn how to get your seat at the table! https://rarediseases.org/event/nord-webinar-your-voice-matters/ …
#RareDisease#DrugDiscovery#HealthCare#MEDTECH#Pharma#LifeSciences#BioPharma#PharmaceuticalsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
How do you define "Patient-Centricity" ??? https://trend.community/news/defining-patient-centricity/ …
#RareDisease#DrugDiscovery#HealthCare#MEDTECH#Pharma#LifeSciences#BioPharma#PharmaceuticalsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
TREND Community proslijedio/la je Tweet
REGISTRATION is officially OPEN for
#RareDC2020 on Capitol Hill. Visit https://bit.ly/36nAAmS and join more than 800 advocates for a unique experience. Are you ready to make a difference and have your voice heard?#raredc2020#rareadvocates#capitolhill#everyvoicematterspic.twitter.com/VSYpw4lmSS
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TREND Community proslijedio/la je Tweet
About
#RareDC2020 "A 10 minute meeting with your member of Congress can have a huge impact that will last years" -Steve Silvestri (Director of Public Policy)@EveryLifeOrg For full interview visit https://bit.ly/2sSDLEV and REGISTER NOW#RAREDC2020
https://bit.ly/3816Eh5 pic.twitter.com/ffJuThfUrb
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Does anyone have thoughts on psychedelics in the rare disease space? https://www.statnews.com/2020/01/07/transforming-psychedelics-into-mainstream-medicines/ …
#RareDisease#DrugDiscovery#HealthCare#MEDTECH#Pharma#LifeSciences#BioPharma#PharmaceuticalsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We're happy to have sat down with Charles River Labs to talk about how TREND is embracing true patient-centricity to revolutionize the world's understanding or rare disease.https://eureka.criver.com/the-science-of-social-listening/?fbclid=IwAR03JQnIPTkbTtiXl4kpVMVb6BAH9x3EeXuy2e64RYpLwQOn6lt8wAMAwxk …
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Some pointers for getting 2020 started off on the right foot and accomplishing all of your goals. https://trend.community/news/how-to-foster-positive-growth-in-2020/ …
#RareDisease#DrugDiscovery#HealthCare#MEDTECH#Pharma#LifeSciences#BioPharma#PharmaceuticalsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
A wonderful article by
@matthewherper that eliminates the noise surrounding drugs prices and replaces it with coherent information about the realties of R&D, reform, and the future of how treatments are paid for. https://www.statnews.com/2019/12/23/debate-over-us-drug-pricing-system-time-to-face-reality/ …#HealthCare#Pharma#PharmaceuticalsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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