TREND Community

@trendcommunity

TREND Community is a digital health company using artificial intelligence to capture current perspectives of rare communities from their social data streams.

Philadelphia, Boston
Vrijeme pridruživanja: kolovoz 2014.

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  1. 4. velj

    Our Founder/CEO, Maria Picone will be teaming up with our Citizen Scientist Award Winner, Lara Pullen to speak at today! Register for the live stream at the link below.

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  2. 30. sij

    Our Annual Letter looks back on 2019 with gratitude while looking forward to 2020 with excitement. It also contains the announcement of our first-ever Citizen Scientist Award!

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  3. 28. sij

    "TSC community members can download the new label to show insurers the broadened approved age group since the label won’t be immediately available in Sabril’s package insert."

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  4. 27. sij

    Learn about exciting changes regarding expanded access to medications that have the power to improve lives at the third annual Expanded Access Summit in Washington, DC starting today!

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  5. 27. sij

    Our founder and CEO will be speaking on a panel Genes Data DIY in Houston Monday, February 3rd through Wednesday, February 5th, 2020. Register to learn more about this exciting event.

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  6. 23. sij

    Our newest Community Voice Report involved some incredible people, and we are pleased to share our CVR on GM2, GM1, and Canavan.

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  7. proslijedio/la je Tweet
    8. pro 2018.

    After 20 years of telling other people’s stories, I decided to tell mine. Thank you ⁦⁩, my friends, ⁦⁩ ⁦⁩ ⁦⁩ ⁦⁩ and ⁦⁩ for helping me find my voice

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  8. 22. sij

    Excited to attend this event hosted by Horizon Therapeutics featuring expert discussion on innovative approaches to addressing the challenges to research and drug development in rare diseases.

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  9. 21. sij

    We are looking forward to attending the Summit, which features some incredible speakers who are sure to bring a wealth of knowledge to every panel and lecture. Register today!

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  10. 16. sij

    Looking forward to and looking back at one of the most important legislative victories the rare disease community has ever had.

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  11. 14. sij
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  12. 13. sij

    Here at let's talk patient experience data! We have it!

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  13. 13. sij

    We here a lot these days about the FDA's interest in the patient voice—drop in on this webinar to learn how to get your seat at the table!

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  14. 9. sij
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    3. sij

    REGISTRATION is officially OPEN for on Capitol Hill. Visit and join more than 800 advocates for a unique experience. Are you ready to make a difference and have your voice heard?

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  16. proslijedio/la je Tweet
    9. sij

    About "A 10 minute meeting with your member of Congress can have a huge impact that will last years" -Steve Silvestri (Director of Public Policy) For full interview visit and REGISTER NOW 👉

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  17. 7. sij
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  18. 6. sij

    We're happy to have sat down with Charles River Labs to talk about how TREND is embracing true patient-centricity to revolutionize the world's understanding or rare disease.

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  19. 2. sij
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  20. 26. pro 2019.

    A wonderful article by that eliminates the noise surrounding drugs prices and replaces it with coherent information about the realties of R&D, reform, and the future of how treatments are paid for.

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