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Conversation

Tatiana Prowell, MD

Breast cancer pts and pt advocates: what are the barriers to participating in trials? Is it getting easier? We want to know if there are things we can help fix. FDAOncology@fda.hhs.gov or tweet

3:41 PM · Dec 9, 2017

Dr. Kelly Shanahan

Replying to

and

@akknowles1 sent you

position paper on clinical trials. You and I talked a bit at #SABCS17 & I'd love to continue the conversation. You can DM me and I'll email you when I get home as well. Great to meet you & we're happy about the recent FDA paper

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Tatiana Prowell, MD

Replying to

and

Thanks so much! Of course I know we spoke. You're pretty unforgettable,

. ;) Look forward to continuing the conversation. Glad you liked the papers (there are several fyi--entire special issue of JCO 11/27/17--so pls spread word if other advocates have not seen!).

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Tatiana Prowell, MD

Thanks for taking the time to respond and share this, @akknowles1. We'll take this home to discuss with the full breast cancer team and the Oncology Center of Excellence.

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Replying to

and

Travel and associated costs. Exclusions like too many lines of chemo. Study should pay for imaging while on trial.

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Isla Dowds-Skinner

Replying to

and

Gosh where do I start! Lack of information lack of pro-active approach, lack of understanding of clinical trials by public, lack of adequate involvement to make trials accessible, cultural barriers for many oh and lack of investment to resolve all these

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@a4breastcancer

Replying to

@BreastAdvocate

and

My 2 cents- Biggest barrier - restrictions - and protocols- each case is individual - and most trials aren’t set up that way

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Dees / @CaseOfDees @ma sto don.so cial

Replying to

and

In the Netherlands? Doctors not aware of trials plus refusal to send patients to participating hospitals/doctors.

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