Tweetovi
- Tweetovi, trenutna stranica.
- Tweetovi i odgovori
- Medijski sadržaj
Blokirali ste korisnika/cu @thisislukasl
Jeste li sigurni da želite vidjeti te tweetove? Time nećete deblokirati korisnika/cu @thisislukasl
-
Worked for
@23andMe and looking for a gig in genetics with the potential to help 200 million rare genetic disease patients? Hmu, DMs are open! https://jobs.agave.com/probablygenetic#23andmehttps://twitter.com/matthewherper/status/1220452206060752896 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lukas Lange proslijedio/la je Tweet
"I visited over 40 doctors as well as health care practitioners & had what seems like dozens of doctor’s visits. Why did it take years for me to be diagnosed? Why didn’t my doctors believe me when I told them something was wrong?" https://buff.ly/2uk5QFt
#BreakingDownBarriersHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We're excited to work with
@theautismdad to help his family find answers!https://twitter.com/theautismdad/status/1220175588071215104 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Happy holidays from the team
@ProbGenetic
!! #rareasone#christmaszebrapic.twitter.com/HJFxuRFabn
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
If you're a
#rare disease patient, parent or care for someone on the#diagnosticodyssey, get in touch!#RareAsOnePrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
None of this would have been possible without the mentorship of
@ycombinator@tenone10@himinnie@dwaxd@vkhosla@khoslaventures@nargesba@tjack@AlexanderStraub@bendavenport@lucyz@OEoftheBay@rhodes_trust@122WESTVCPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
I couldn't be more proud of our amazing team and am so grateful to everyone who has supported us along the way
@taylorkane23@theautismdad@Durhane@jonasbovijn@patientexpert@stopbatten@rareundiagnosed@GlobalGenesPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
1 long year of work and we're finally there! We just launched the best value clinical-grade genetic test on the market & will keep working tirelessly to make a difference for the
#400million#raredisease patients world-wide. Get yours now at http://probablygenetic.com https://twitter.com/ProbGenetic/status/1207392699424198656 …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
-
Lukas Lange proslijedio/la je Tweet
Thank you for your leadership
@RadyGenomics you are a pioneer in improving the diagnostic odyssey.#WGSHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Another story about the Vega family She began to talk — then mysteriously fell silent. Months later her parents learned why (2/2)
#rare#raredisease#rettsyndrome#diagnosticodysseyhttps://www.washingtonpost.com/health/medical-mysteries/she-began-to-talk--then-mysteriously-fell-silent-months-later-her-parents-learned-why/2019/10/11/703f97f4-c9be-11e9-a1fe-ca46e8d573c0_story.html …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
What the diagnostic odyssey looks like, all the best to the Bruner family (1/2)
#rare#raredisease#battendisease#diagnosticodyssey Praying for a cure: Genetic test uncovers Florida girl's extremely rare disorderhttps://www.fox13news.com/news/praying-for-a-cure-genetic-test-uncovers-florida-girls-extremely-rare-disorder …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
How many rare diseases are there? Latest estimates suggest ~10,000, with rare disease patients constituting up to 10% of the population https://www.nature.com/articles/d41573-019-00180-y …
#rare#rarediseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
-
#geneticcounseling twitter: who are the best#geneticcounselors for#raredisease you know? Looking for someone w/ empathy & intuition for how to communicate results to rare Moms@JennaGuLCGC@hyattcgc@Insight_Shelby@Nanor_GC@aishuarjun@GCBrianne@rarediseasemom@laurahercherPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lukas Lange proslijedio/la je Tweet
My University was going to throw away what I think was the first Illumina HiSeq 1000 shipped to Europe. I moved the HiSeq in my office, and transformed it in the most expensive (and technologically advanced, although a little noisy) refrigerator I ever had.pic.twitter.com/zfQfTbNd95
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lukas Lange proslijedio/la je Tweet
Mama bear thread: Last night,
@ABC7Chicago aired a beautiful interview, conducted by @BabichABC7, with our family. For the first time, on camera, we shared that our baby girl is dying. 1/https://abc7chicago.com/health/hamilton-star-says-daughters-severe-epilepsy-changed-priorities-from-acting-to-advocacy/5601335/ …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Super excited to read
@taylorkane23 ‘s new book!@remember_girls


pic.twitter.com/36sGnZBN87
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lukas Lange proslijedio/la je Tweet
New blog post alert!
"How Social Media Helps the Rare Disease Community" is up on our Medium publication and ready for you to read and share. http://ow.ly/WErG50wbrQi #RareDisease#RareDiseaseAdvocacy#SocialMediaAdvocacyHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lukas Lange proslijedio/la je Tweet
Rare genetic conditions can take up to 7 years to identify. During the
#diagnosticodyssey, patients are often misdiagnosed and left searching for answers. How long was your diagnostic odyssey?#ProbablyGenetic#QuestionOfTheWeek#RareDisease#GeneticTesting#ExomeSequencingpic.twitter.com/wZlWtkw9Qs
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.