I've been sponsored by a grant of credits from Amazon which is a bit surreal but cool.
-
Show this thread
-
I may have to put off the PhD for a year. There's money things to organise and some jobs that want me (working at university, or project manager consultant, possibly web dev stuff) but I can't say much online.
1 reply 0 retweets 0 likesShow this thread -
Plus of course, I'm still hoping to be with
@TheGldDragon soon(TM)1 reply 0 retweets 1 likeShow this thread -
Oh the other thing happening to me is I've managed to do some damage to my ankle and that might take a few months to heal. Bleh
3 replies 0 retweets 0 likesShow this thread -
Replying to @thegoldqueen
Oh no, those are the worst. If you need any tips let me know. I've become an unofficial expert over the years due to my hypermobility. My ankles were the weakest part of my body until I had dedicated physio on them for years.
1 reply 0 retweets 0 likes -
Replying to @JustGeekingBy
That would be great. I'm hypermobile but prob not enough for eds dx. Done some "soft tissue damage" so I got to be a little careful not to walk too far. I was previously taking looong uphill walks every day.
2 replies 0 retweets 1 like -
Replying to @thegoldqueen
They changed it to a spectrum disorder in recent years so that's not uncommon. This test gives you a good idea of how hypermobile you are - https://www.ehlers-danlos.com/assessing-joint-hypermobility/ … I'm a 9/9 for example. I'd need to be officially re-diagnosed as hypermobile EDS but it's a massive hassle.
1 reply 0 retweets 0 likes -
Replying to @JustGeekingBy
It's the other stuff that affects me: anaesthetic difficulties, joint pain, scarring, problem in pregnancies, always doing my joints in, especially pelvis and fingers
1 reply 0 retweets 1 like -
Replying to @thegoldqueen
Then you do have EDS as those are all symptoms specific to EDS. Joint hypermobility is the lowest part of the spectrum is basically what is known as being double jointed - people can do it but it doesn't cause them any problems in life.
1 reply 0 retweets 0 likes -
Replying to @JustGeekingBy @thegoldqueen
I have all that fun stuff too, minus the pregnancy stuff afaik atm (not come up yet!). I also have skin elasticity and very fun moving veins, plus I know for certain it's genetic which is a sure sign that it's EDS.
1 reply 0 retweets 0 likes
Ahh
-
-
-
- Show replies
New conversation -
Loading seems to be taking a while.
Twitter may be over capacity or experiencing a momentary hiccup. Try again or visit Twitter Status for more information.