TIF

@thalassaemiaTIF

A non-profit organization based in Cyprus advocating for the prevention & treatment of thalassaemia & other haemoglobin disorders & patients' rights worldwide.

Cyprus
Vrijeme pridruživanja: listopad 2013.
Rođen/a 1987.

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  1. proslijedio/la je Tweet
    4. velj
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  2. 3. velj

    🆕's Renzo Galanello Fellowship Programme is back! If you are a physician in the field of haematology wanting to obtain practical experience in the care of with , you may be eligible for our 2-month training Fellowship! More:

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  3. 31. sij

    HAPPENING NOW:📢 A meeting with our collaborators Dr. Eva Knoll, Anthropologist , Mr. Konstantinos Tsurlis and Mr. Ali Sattarpour is taking place at the moment at Headquarters, Cyprus.

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  4. 30. sij

    Thank you to for an engaging Conference, and for inviting us to share our expertise and resources on with participant and .

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  5. 30. sij

    Congratulations to 's Member Thalassemia Foundation Ghana for the organisation of a Bone Marrow Transplant (BMT) Awareness Campaign for and disease , on January 25, 2020, in the Ashanti Region of Ghana! 👏👏

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  6. 30. sij

    A highly informative article, entitled ''Understanding the complications of '',was recently published by the American Journal of Nursing. The article is available here👇 More literature on & 👇

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  7. 27. sij

    An investigational gene therapy for Sickle Cell Disease () and β-, known as ARU-1801, has been given Orphan Drug Designation an orphan drug by the , a status that helps to advance and support its development. Read more:

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    Dr. Tippi MacKenzie and team at UCSF are conducting the world’s first clinical trial of in utero hematopoietic stem cell transplantation in fetuses diagnosed with Alpha Major. Learn more in this video:

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  9. 22. sij

    It is with deep regret and profound sorrow that we announce the passing of Dr. Lefteris Eleftheriou, a beloved friend of and husband of the Federation's Executive Director, Dr. Androulla Eleftheriou.

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  10. 20. sij

    Sickle Cell Disease , 39 year-old Charles Hough, describes ‘rebirth’ after gene therapy Read more:

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  11. 17. sij

    Catch up with our most recent newsletter & get informed about ’s activities & achievements in the past few months! If you would like to receive our news directly into your inbox, subscribe here

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  12. 15. sij

    In order to help & healthcare professionals in Europe achieve a better understanding of , has officially partnered since 2018 with the EU for the implementation of the project! Learn more:

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  13. 14. sij

    Bluebird bio announces 1st commercial launch of ZYNTEGLO™ for with β- in Germany! More details: …/bluebird-bio-announces-1st-c…/

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  14. 13. sij

    A research centre is soon to be set up in Warangal, the Indian state of Telangana. Read more:

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  15. 10. sij

    Aruvant Receives U.S. Food and Drug Administration (FDA) Rare Pediatric Disease Designation for gene therapy ARU-1801 for the Treatment of Disease (SCD) and possibly b-. Read more:

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  16. 7. sij

    January is National Blood Donor Month in the &the American announced there is a critical need for ,essential for many with Visit to learn how you can help

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  17. 3. sij

    An interesting retrospect of the Top 10 Stories of 2019, as presented by Sickle Cell Disease News

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  18. 19. pro 2019.
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  19. 17. pro 2019.

    A very stimulating educational video on β- was created by , a comprehensive platform that helps clinicians, caregivers & around the world understand health more thoroughly. Watch it here:

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  20. 13. pro 2019.

    's brand new e-glossary on is now available online! A useful educational tool to help gain further comprehension on the most fundamental terms & definitions about a broad range of aspects relevant to the disease.

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