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TIF proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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#TIF's Renzo Galanello Fellowship Programme is back! If you are a physician in the field of haematology wanting to obtain practical experience in the care of#patients with#thalassaemia, you may be eligible for our 2-month training Fellowship! More: http://bit.ly/36WqkS6 pic.twitter.com/S5chVzKk80
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HAPPENING NOW:
A meeting with our collaborators Dr. Eva Knoll, Anthropologist #Austria, Mr. Konstantinos Tsurlis#Germany and Mr. Ali Sattarpour#France is taking place at the moment at#TIF Headquarters, Cyprus. http://bit.ly/2S2Zu5y#thalassaemia#THALIA#TIFCountriespic.twitter.com/2QOPrfoIX6
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Thank you to
@hnhcp for an engaging Conference, and for inviting us to share our expertise and resources on#thalassaemia with participant#Nurses and#HealthcareProfessionals. http://bit.ly/2OdH4Od https://twitter.com/hnhcp/status/1215955488883560448 …
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Congratulations to
#TIF's Member Thalassemia Foundation Ghana for the organisation of a Bone Marrow Transplant (BMT) Awareness Campaign for#thalassaemia and#sicklecell disease#patients, on January 25, 2020, in the Ashanti Region of Ghana!
http://bit.ly/2RC1mTC pic.twitter.com/0EGIiOzvTu
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A highly informative article, entitled ''Understanding the complications of
#SickleCellDisease'',was recently published by the American Journal of Nursing. The article is available here
http://bit.ly/37GeDjD
More literature on #SCD &#thalassaemia
http://bit.ly/2O8AoRo pic.twitter.com/wE59Ab7CHt
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An investigational gene therapy for Sickle Cell Disease (
#SCD) and β-#thalassaemia, known as ARU-1801, has been given Orphan Drug Designation an orphan drug by the#FDA, a status that helps to advance and support its development. Read more: https://thalassaemia.org.cy/news/fda-grants-orphan-drug-designation-for-aru-1801-for-the-treatment-of-sickle-cell-disease-%ce%b2-thalassaemia/ …pic.twitter.com/8Ngfvzz9CY
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TIF proslijedio/la je Tweet
Dr. Tippi MacKenzie and team at UCSF are conducting the world’s first clinical trial of in utero hematopoietic stem cell transplantation in fetuses diagnosed with Alpha
#Thalassemia Major. Learn more in this video: http://bit.ly/alpha-thal-trial …#clinicaltrial#stemcells#future#hopepic.twitter.com/V9slP1SZ2S
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It is with deep regret and profound sorrow that we announce the passing of Dr. Lefteris Eleftheriou, a beloved friend of
#TIF and husband of the Federation's Executive Director, Dr. Androulla Eleftheriou. http://bit.ly/2GfGqLE pic.twitter.com/V8BcR5KUvD
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Sickle Cell Disease
#patient, 39 year-old Charles Hough, describes ‘rebirth’ after gene therapy Read more: https://sicklecellanemianews.com/2020/01/16/sickle-cell-patient-discusses-gene-therapy-clinical-trial-in-nord-webinar/ …#SickleCell#SCD#GeneTherapyHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Catch up with our most recent newsletter & get informed about
#TIF’s activities & achievements in the past few months! http://bit.ly/30szQuJ If you would like to receive our news directly into your inbox, subscribe here http://bit.ly/2R2q0g3#THALIA#thalassaemia#SCDpic.twitter.com/xqWgR3ihMf
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In order to help
#patients & healthcare professionals in Europe achieve a better understanding of#thalassaemia,#TIF has officially partnered since 2018 with the EU for the implementation of the#THALIA project! Learn more: http://bit.ly/2Ri1Mxh pic.twitter.com/clIbTOs5X9
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Bluebird bio announces 1st commercial launch of
#GeneTherapy ZYNTEGLO™ for#patients with β-#thalassaemia in Germany! More details: https://thalassaemia.org.cy/ …/bluebird-bio-announces-1st-c…/#TIF#Zynteglo#innovativetherapiespic.twitter.com/026VhvoDfm
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A
#thalassaemia research centre is soon to be set up in Warangal, the Indian state of Telangana. Read more: https://telanganatoday.com/thalassaemia-research-centre-in-warangal-soon …#TIF#IndiaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Aruvant Receives U.S. Food and Drug Administration (FDA) Rare Pediatric Disease Designation for gene therapy ARU-1801 for the Treatment of
#SickleCell Disease (SCD) and possibly b-#thalassaemia. Read more: http://bit.ly/307NUti pic.twitter.com/jtNca3WXkU
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January is National Blood Donor Month in the
#US &the American@RedCross announced there is a critical need for#BloodDonations,essential for many#patients with#thalassaemia Visit http://thalassemia.org/blood to learn how you can help@cooleysanemia#DonateBlood#SaveALife#TIFpic.twitter.com/mAtb6tFRJo
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An interesting retrospect of the Top 10
#SickleCell Stories of 2019, as presented by Sickle Cell Disease News@sickleacell#TIF https://sicklecellanemianews.com/2020/01/02/top-10-sickle-cell-disease-stories-of-2019/ …pic.twitter.com/9q2T7dGkHZ
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Global Blood Therapeutics (GBT) and Syros Pharma announced their partnership to discover, develop and commercialize novel therapies for β-
#thalassaemia and#SickleCell Disease. https://thalassaemia.org.cy/news/global-blood-therapeutics-syros-pharma-announced-their-partnership-to-discover-develop-and-commercialize-novel-therapies-for-%ce%b2-thalassaemia-scd/ …pic.twitter.com/KbB0ExY72O
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A very stimulating educational video on β-
#thalassaemia was created by@OsmosisMed, a comprehensive platform that helps clinicians, caregivers &#patients around the world understand health more thoroughly. Watch it here: https://www.youtube.com/watch?v=oH6SMG3Ykjg …#TIF#PatientEmpowermentHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#TIF's brand new e-glossary on#thalassaemia is now available online! A useful educational tool to help#patients gain further comprehension on the most fundamental terms & definitions about a broad range of aspects relevant to the disease. http://bit.ly/2t6qpnZ#THALIApic.twitter.com/xtZj2SbWcj
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