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suerobinsyvr's profile
sue robins (she/her)
sue robins (she/her)
sue robins (she/her)
@suerobinsyvr

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sue robins (she/her)

@suerobinsyvr

HUMANITY IN HEALTH CARE FOR ALL | @ReadyForMyShot | Author, Bird's Eye View | Patient Experience | Caregiver | #COVIDZero | new book: http://suerobins.com/go-signup 

Unceded Coast Salish territory
suerobins.com
Joined September 2010

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    sue robins (she/her)‏ @suerobinsyvr 17 Jun 2019

    Me: Here is my patient experience. Twitter: That can’t be your experience. Twitter: Cite me the research to prove your experience. Twitter: You are to blame for your own experience. Twitter: My experience was different than your experience. Now I will hijack your tweet. /1

    7:21 AM - 17 Jun 2019
    • 32 Retweets
    • 124 Likes
    • fuzzzilla twist cynthia park chibi chan 🐯 🏴 Fiona teamteer Pain Warrior William Palmer Lisa Maczura stands with TX Dems
    5 replies 32 retweets 124 likes
      1. New conversation
      2. sue robins (she/her)‏ @suerobinsyvr 17 Jun 2019

        Me: Here is my patient experience. Twitter: I am a doctor. Only my patient experience matters. Twitter: Let me tell you all about your experience. Twitter: You are N of 1, so your experience is null + void. Twitter: You do not represent all patients, so this means nothing. /2

        2 replies 6 retweets 36 likes
        Show this thread
      3. sue robins (she/her)‏ @suerobinsyvr 17 Jun 2019

        Me: Here is my patient experience. Twitter: Your experience could not have been that bad. Twitter: Show me the evidence that this was your experience. Twitter: Quit complaining you whiner. You are lucky to even have health care to begin with. /FIN

        4 replies 5 retweets 39 likes
        Show this thread
      4. sue robins (she/her)‏ @suerobinsyvr 17 Jun 2019

        For bonus points! Me: Here is my patient experience. Twitter: I am a man. Let me correct you, try to argue with you + explain how your experience was all wrong.

        4 replies 5 retweets 54 likes
        Show this thread
      5. End of conversation
      1. New conversation
      2. Stephanie Fischer‏ @RarePOV 17 Jun 2019
        Replying to @suerobinsyvr

        I had patient advocates tell me I misunderstood or was wrong because my experience was different than theirs. That reinforced the importance of listening to people who have different experiences rather than appearing to challenge them, which can seem like a personal attack.

        3 replies 4 retweets 29 likes
      3. Jana Buhlmann‏ @baldgrrl 17 Jun 2019
        Replying to @RarePOV @suerobinsyvr

        This thread reinforces that there is really only one comment when people share their patient experience - some version of “I see/hear you.” Or a like or retweet. Amplify.

        0 replies 2 retweets 10 likes
      4. End of conversation
      1. Mel‏ @atheniaris 17 Jun 2019
        Replying to @suerobinsyvr @DrTiffTaft

        One of the worst experiences I've had was a nurse who pinched my underarm as hard as she could while giving my heparin shots. That combined with her overall rudeness after my major surgery gave me the motivation to GTFO of there as fast as I could despite needing more time.

        0 replies 0 retweets 4 likes
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      1. Once Diabetes‏ @MelindaSeedT1D 17 Jun 2019
        Replying to @suerobinsyvr

        It's the rush to blame people for their own experience that is so unhelpful. I have probably been guilty of it myself, in trying to help people avoid similar experiences 😬

        0 replies 0 retweets 3 likes
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      1. Mavis‏ @MavisnMavis 17 Jun 2019
        Replying to @suerobinsyvr

        What makes healthcare complex? Every human is different. Please don’t stop sharing your story. You matter.

        0 replies 0 retweets 2 likes
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