Me: Here is my patient experience. Twitter: I am a doctor. Only my patient experience matters. Twitter: Let me tell you all about your experience. Twitter: You are N of 1, so your experience is null + void. Twitter: You do not represent all patients, so this means nothing. /2
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Me: Here is my patient experience. Twitter: Your experience could not have been that bad. Twitter: Show me the evidence that this was your experience. Twitter: Quit complaining you whiner. You are lucky to even have health care to begin with. /FIN
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For bonus points! Me: Here is my patient experience. Twitter: I am a man. Let me correct you, try to argue with you + explain how your experience was all wrong.
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I had patient advocates tell me I misunderstood or was wrong because my experience was different than theirs. That reinforced the importance of listening to people who have different experiences rather than appearing to challenge them, which can seem like a personal attack.
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This thread reinforces that there is really only one comment when people share their patient experience - some version of “I see/hear you.” Or a like or retweet. Amplify.
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One of the worst experiences I've had was a nurse who pinched my underarm as hard as she could while giving my heparin shots. That combined with her overall rudeness after my major surgery gave me the motivation to GTFO of there as fast as I could despite needing more time.
Thanks. Twitter will use this to make your timeline better. UndoUndo
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It's the rush to blame people for their own experience that is so unhelpful. I have probably been guilty of it myself, in trying to help people avoid similar experiences
Thanks. Twitter will use this to make your timeline better. UndoUndo
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What makes healthcare complex? Every human is different. Please don’t stop sharing your story. You matter.
Thanks. Twitter will use this to make your timeline better. UndoUndo
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