8 years ago with an 8% chance of surviving 5 years, I set 2 goals:
(1) to live to my 50th birthday ✅
(2) to see my son graduate HS ✅
FU stage IV #cancer. We did it!! 🎓💖👨🎓🙏🎉 #miraclesdohappen #grateful #blessed #classof22
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Stacy Hurt (she/her)
@stacy_hurt
Champions #inclusion of voices of #patients in #healthcare 
#raredisease mom/#caregiver 
#cancer survivor
lover of life 
tweets my own
#raredisease mom/#caregiver #cancer survivor lover of life tweets my ownStacy Hurt (she/her)🌻’s Tweets
I’m looking forward to delivering a key note address to the important group!! #patients #healthcare #medicine #digitalhealth
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Next week, more than 140 NHC member nonprofit leaders, sponsors, and guests will connect at NHC #HLC2023! This year’s theme is Change Agents for Patient Health - offering attendees the chance to exchange best practices, network, & more. bit.ly/3kX9BuA
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Watching passionately sing “Silver Springs” to Lindsey Buckingham in “The Dance” to basically torture him remains one of the best things I’ve ever seen 25 years later
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On this #WorldCancerDay, we are honored to share a story from our colleague, Marina Breycher, a Decentralized Clinical Trials Implementation Lead in Denver, CO, who is currently battling breast cancer.
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As a stage IV #cancer survivor, I strive to #CloseTheCareGap for those affected by inequities today on #WorldCancerDay & every day 💜#Patients with #disabilities should have the same access to #clinicalresearch as I did ♿️ #Inclusion makes a difference in #patientcare
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Very busy 2 days for #patients in the Hurt household 🏥 Today I’m addressing a pain that I was putting off until after Emmett’s 🦷 surgery. Undergoing lots of tests 😕❤️🩹And I challenge you to have more diagnoses than me 🏆 #cancer #patientlife
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Amazing article !!!
Patients and Industry: Starting Our New Life Together in 2023
#patientcare #patientvoice #digitalhealth #ehealth
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Anesthesia, nurses, clinical staff all amazing ❤️ Every precaution was taken for Emmett’s aspiration risk to protect his airway. Pain relief thoroughly addressed #grateful #patientcare
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An outstanding #patientexperience at for extraction of Emmett’s 4 impacted wisdom teeth🦷 Deepest gratitude to Dr. Martin Eichner for being our ally for insurance auths and easing this #raredisease mom’s anxiety ❤️ We are in recovery- Emm doing well 🙏😇
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I believe I've said this before, but it bears repeating.
"Just give her chemo" belies a minimizing assessment of the toxicity of treatments. When the risks outweigh the benefits, no matter how hard it is, we have an ethical obligation to oppose such requests.
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💯 Patient led research disrupts the power inequality inherent in the medical system. It addresses paternalism, economic incentives, determination of projects that matter, and ways of respectfully engaging the community in one fell swoop.
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Moving from patient centric 
#patients includedpatient led 
participatorymedicine.org/epatients/2023
Update & overview of @US_FDA patient focused drug development guidance & new DEI mandate for #biotech & #pharma sponsors @S4PM #clinicaltrials #research #patientengagement #advocacy
#patients includedpatient led
participatorymedicine.org/epatients/2023
Update & overview of @US_FDA patient focused drug development guidance & new DEI mandate for #biotech & #pharma sponsors @S4PM #clinicaltrials #research #patientengagement #advocacy
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TY Dr. & Dr. for inviting me to share my patient experience & advocate thoughts on #financialtoxicity in . And huge TY to Dr. for leaning in early & ALWAYS to the inclusion of patient & advocate voices
sciencedirect.com/science/articl
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Want to give something gorgeous *and* #healthy this #ValentinesDay?
Send a "Spa in a Box" or "Work Break in a Box" at 10% off though Feb 14 using checkout code LOVE10 adarose.com
We'll even wrap it with a red satin ribbon if you like. Spread the ❤️!
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Thank you for this important update about improving patient-centered health care. #PatientAdvocacy #S4PM #Patients and Industry: Starting Our New Life Together in 2023 - SPM Blog
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Fantastic panel this afternoon on why the rare disease story is important and how #hitmc can include the rare patient and caregiver stories in communications plans and more moving forward. Thank you to those who showed up and out for this important conversation! #digitalhealth
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Congratulations to my neighbor!!! 💚🤍
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Congrats to Morgan Clark on continuing her academic and athletic careers at Westminster College. #SFLionPride
"Patients and Industry: Starting Our New Life Together in 2023," a new guest column on the Society for Participatory Medicine's e-Patients Blog, by the indefatigable Stacy Hurt participatorymedicine.org/epatients/2023 #clinicaltrials #FDA #cancer
#raredisease #healthequity
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Moving from patient centric ➡️#patients included➡️patient led 💪💥
participatorymedicine.org/epatients/2023
Update & overview of patient focused drug development guidance & new DEI mandate for #biotech & #pharma sponsors #clinicaltrials #research #patientengagement #advocacy
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At #SCOPE2023, our own Neil Berger will explore the changing landscape of clinical development and how FSP is shifting from a “buy it” to “build it” approach through collaborative partnerships and talent development. Stop by Booth #507 to connect with the team!
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Hold up: does this say #telehealth ends May 11?!?!? Hard stop 🛑
#Patients ABSOLUTELY need this. What is the interventional strategy?
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The Biden Administration has announced it's ending the COVID public health emergency May 11. Here's what that means.
kff.org/coronavirus-co
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Practical tips and first-hand advice for #digitalendpoint selection and implementation. Attend the February 9 webinar to learn the how, what and why of digital endpoint adoption. Brought to you by
ow.ly/rG1r50MEqmG
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Celebrating #BlackHistoryMonth as a white, privileged person who graduated with 3 black kids in my HS class and who since then has been on a quest to diversify my perspectives and understand others’ experiences that differ from my own 🫱🏾🫲🏻#WhiteForBlack
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For patient advocates… how we understand the healthcare industry is self taught because it is survival. It’s both our greatest strength and weakness.
We’re left to piece together the nuances of the most complex industry in the country ourselves while operators build it.
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Why do we do what we do, the way that we do it? Because people with the love of Katy Manni deserve the best of us 🙏🏻
ideapharma.com/insights/dear-
#williamssyndrome
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"#Startups are the future of solving #healthcare's greatest ills."
Awesome to be able to sit down w/ 's at & share 's mission, trends in #DigitalHealth & why #pinksocks matter.
bit.ly/3Yeimiu
#HLTH #DigitalHealth
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9 Digital Health Leaders talking about Patient Care
$18627623$
#digitalhealth #patientcare #ehealth #telehealth #patientfirst #healthcare
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Hey - if you need a patient/caregiver/advocate who is prolific on social media & also works for a CRO, I may know someone...😉#heretohelp🤝
#Patients are using social media — clinical trial experts can learn from that pharmavoice.com/news/Pistoia-A via
Dear
Whoever these referees are. Please make sure they never officiate an AFC Championship game ever again. As a matter of fact…they should be gone for good. Unbiased opinion here…The bengals got shafted tonight. Really poor performance all around. Sucks to watch.
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Enough with (non) entertaining Lies! When Vigilante Journalism Runs Unchecked, People Die! How speed and tribalism damage #publichealth.
With freedom of the press comes societal responsibility.
#COVID #Science #Viralnews #ProjectVeritas
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“The question isn’t who is going to let me; it’s who is going to stop me.”
–- Ayn Rand
#growthmindset #leadership #lifehacks
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It’s not his birthday, or our anniversary, or Valentine’s Day. And I don’t want anything. It’s January 28th and I love you . You make me laugh every day ❤️
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Though many things are modernizing and going digital, a world without folded perfume samples is not a world I want to be in 💝
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Adults have to stop doing things just because “they can” and start doing things because “they can effect a good outcome”
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Pleased to see all of my fave #advocacy groups mentioned here who helped me through my illness as an early onset #colorectalcancer survivor 💙
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Advances in digital health create opportunities for richer evidence generation and improved patient experiences throughout the drug development and commercialization process. This webinar explores the integration of eCOA science and sensor technology in clinical trials.
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“#Courage is not the absence of fear but rather the assessment that something else is more important than fear.” —Franklin D. Roosevelt
#leadership #lifehacks #weekendmood
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SPEAKING NOW‼️
at The 2022 #OncoAlertColloquium 🚨
DAY 5: GI Oncology
🇺🇸on #PancreaticCancer
youtu.be/r0a913rSge0 via
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✳️The paper that we discussed the role of neoadjuvant IO therapy for pts with MSI-H colon and rectal cancer is now accepted for publication ❗️
✳️We reviewed the recent ground breaking progress and elaborated on challenges and future opportunities ❗️
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