Stephen Finger

@srfinger

YHS '95. Princeton '99. Duke '08. Father of two, husband of 1. Former Econ prof at U. South Carolina. USMNT, Atlanta United, Gamecock fan. Living with ALS.

Atlanta, GA
stephenfinger.wordpress.com
Vrijeme pridruživanja: travanj 2012.
41 fotografija ili videozapis Fotografije i videozapisi

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  1. proslijedio/la je Tweet
    7. sij

    So , , , , want to help make this dream real and challenge our collective 250,000 followers to sign on?

    24 proslijeđena tweeta 77 korisnika označava da im se sviđa
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  2. proslijedio/la je Tweet
    14. pro 2019.

    10 proslijeđenih tweetova 87 korisnika označava da im se sviđa
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  3. proslijedio/la je Tweet
    28. lis 2019.

    My once-vibrant husband died of ALS, and my complicated grief is deep

    1 reply 6 proslijeđenih tweetova 44 korisnika označavaju da im se sviđa
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  4. 7. lis 2019.

    The Patient and Caregiver Advisory Committee began working on the FDA guidance in 2015. 9 of 19 patients have since died. We are pleased that FDA released a final version and believe it is a positive step for the ALS community. Here is our response

    14 proslijeđenih tweetova 31 korisnik označava da mu se sviđa
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  5. proslijedio/la je Tweet
    9. ruj 2019.
    Odgovor korisnicima

    Also if the design has the effect of discouraging early adoption of NIV, either through their exclusion criteria or by removing patients from the trial when they start NIV, I would argue it violates the guidance. You are negatively impacting an important part of standard of care.

    1 proslijeđeni tweet 1 korisnik označava da mu se sviđa
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  6. proslijedio/la je Tweet
    26. kol 2019.

    Today we announce the release of our Principles for Urgent, Patient-Centered ALS Clinical Trials: a series of recommendations to clinical trial sponsors & regulatory bodies worldwide. You can read a blog post on these Principles here:

    8 replies 21 proslijeđeni tweet 37 korisnika označava da im se sviđa
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  7. 20. kol 2019.

    4 korisnika označavaju da im se sviđa
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  8. proslijedio/la je Tweet
    28. stu 2018.

    AMG Among Founding Donors to Establish The Sean M. Healey and AMG Center for ALS at Massachusetts General Hospital

    1 reply 2 proslijeđena tweeta 9 korisnika označava da im se sviđa
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  9. proslijedio/la je Tweet
    17. ruj 2018.

    The community presented recommendations regarding the FDA's draft ALS Guidance document at a day-long event on 7/12. We recently submitted the formal Workshop report & recommendations to the FDA. Learn more: .

    1 reply 13 proslijeđenih tweetova 24 korisnika označavaju da im se sviđa
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  10. proslijedio/la je Tweet
    24. srp 2018.

    Perspective | Audi Field opening and a tragedy trigger lifetime of memories for D.C. area soccer family

    17 proslijeđenih tweetova 74 korisnika označavaju da im se sviđa
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  11. 13. srp 2018.

    I checked in at the desk 2 hours early. I was at the gate 1 hour before scheduled BOARDING. And I get lectured for delaying departure? Minimal competence and decency would be nice.

    1 reply 2 proslijeđena tweeta 10 korisnika označava da im se sviđa
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  12. 13. srp 2018.

    The amazing thing about computers is that when information is entered in the computer six times in 3 days presumably it could show up on the seventh agent’s machine as well.

    1 reply 2 proslijeđena tweeta 5 korisnika označava da im se sviđa
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  13. 16. lip 2018.

    Congrats to my favorite Viking !!!

    1 proslijeđeni tweet 4 korisnika označavaju da im se sviđa
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  14. proslijedio/la je Tweet
    13. lip 2018.

    Devastated by ALS, he’s trying to save others. Please meet scientist/doctor/patient Rahul Desikan.

    5 replies 27 proslijeđenih tweetova 55 korisnika označava da im se sviđa
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  15. proslijedio/la je Tweet
    25. svi 2018.

    Four years ago I died in a car accident. When…

    1 reply 6 proslijeđenih tweetova 25 korisnika označava da im se sviđa
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  16. proslijedio/la je Tweet
    4. svi 2018.

    ALS advocate at asks how FDA guidance can be more responsive? @SGottliebFDA says he knows some feel the draft guidance missed the mark

    2 proslijeđena tweeta 7 korisnika označava da im se sviđa
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  17. 25. velj 2018.

    The explicitly bans these exact advances! I assume ALS advocacy orgs are preparing their strategies for modernizing this document that otherwise will mandate the use of antiquated techniques that ignore reality of ALS.

    Tweet je nedostupan.
    1 reply 4 proslijeđena tweeta 11 korisnika označava da im se sviđa
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  18. proslijedio/la je Tweet
    4. velj 2018.

    My pal, @Huey_Lewis_News representing

    50 replies 138 proslijeđenih tweetova 997 korisnika označava da im se sviđa
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  19. 21. pro 2017.

    This is probably the coolest compliment I have ever gotten!

    There is a true viking fighting Respect.
    1 proslijeđeni tweet 16 korisnika označava da im se sviđa
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  20. 20. pro 2017.

    Thoroughly enjoyed attending the ALS/MND Symposium Here are my takeaways from a patient’s perspective

    8 proslijeđenih tweetova 18 korisnika označava da im se sviđa
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