Dr Myhill's call for a Public Inquiry into the Abuse of ME Sufferers - 'MAIMES' - UPDATE - please see screenshot - 38 MP s now signed up. Please continue to support us - see here for how - drmyhill.co.uk/wiki/Medical_A #MEcfs #PwME #CFS #millionsmissing
#PACEtrial #PACEFraud
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Let’s enlighten the Parliamentary Under Secretary of State for Public Health and Primary Care, Steve Brine MP. Please get writing #pwME #MillionsMissing
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Please sign the petition. Please contact your MP. See change.org/p/the-general- and drmyhill.co.uk/wiki/Medical_A
#MEcfs #CFS #MyalgicE #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFIDS #PwME #MyalgicE #MEcfs #pwme #MyE #CFIDS #CFS #millionsmissing #PACEtrial #PACEFraud
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No answer from my GP to say if I’m in priority group 6.
No reply from my MP, who I asked to raise the issue in Parliament.
No response from the BBC about my CG complaint.
No wonder #PwME feel sidelined, silenced & ignored
#MEAwarenessHour #MECFS #MillionsMissing #MedTwitter
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"If PACE were a drug it would be banned" @LizMcInnes_MP quoting #MerrynCrofts's mother #MEDebate #pwme #mecfs #MyalgicE #MillionsMissing
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I would like to thank @NickTorfaenMP for raising his question on M.E on my behalf in parliament today #me #cfs #MP #Parliament #MEAction #millionsmissing #MyalgicEncephalomyelitis #MEActionNet
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Writing to my MP to ask him to sign ’s EDM 1247 and to write to Jeremy Hunt.
Here are all my letters to and from my MP about ME since 1992. Most of my letters have been written from bed. Many took me weeks to write.
#MillionsMissing
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I spoke at Rally yesterday on behalf of those people with #ME and #CFS unable to come, and to demand more info and training for drs, more research & benefit changes.
Ruth is one of the ME missing who couldn’t come. #helloRuth
#MillionsMissing
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I emailed NSW Upper House Greens MP Cate Faehrmann, to tell her about my story and #MillionsMissing. She posted this😊. #Spoonies PLEASE go to her IG and “like” or comment to let her know the M.E. Community 💙 this support from our polititions. #MEawarenessweek #May12th
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Loud cheer of “HEAR, HEAR!” when condemned ’s suggestion that by standing up for people with ME her conduct is “unbecoming of an MP.” #MEdebate #millionsmissing
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I might not be well enough for #MillionsMissingBristol this year but touched to have my partner, my MP and my dog there to represent me 😍
Thanks to for her work for #MyalgicEncephalomyelitis
#MillionsMissing #CanyouseeMEnow
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Thank you for your fire and impassioned, educated speech, thank you to all MP's who represented their constituents and provided a much-needed voice. Here's hoping for meaningful action, overdue for far, far too long. #MEDebate #MEcfs #millionsmissing
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Something that has been a positive change since last #MillionsMissing is the level of UK MP involvement in our campaign
There have been debates in parliament and motions passed (see thread)
It gives us hope that the policy and funding changes we need are the next step 👍🏻
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A privilege to speak at the #MillionsMissing event in #Sheffield today.
So many thousands suffer in silence with M.E. but now their voices are being heard and they need to see action - research, support and an end to discrimination.
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#MEDebate #millionsmissing #PWME The MP talking now, is it the health Minster?
Saying about sever ME sufferers needing help straight away - I have just been told today that all my local help is CBT & GET based. I want to scream at him right now.....
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Carol Monaghan MP says current investment in ME research is unacceptable and calls on MPs to help to bring about “real change” for people with ME:
politicshome.com/news/uk/health
Thank you #millionsmissing
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TODAY
11.00 - 11.30am UK
#MEcfs #MyalgicE #pwME #PACEtrial #MillionsMissing #chronicillness #disability #health #pwME #debate #MP #publichealth #healthcare #NHS #GET #CBT #MyE
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Have secured an important debate in Westminster Hall on the PACE Trial and its Impact on People With ME.
Please let me know if you have been affected. @MEAssociation
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Green MP & Mayor Janet Baah join the #MillionsMissing campaign in #Lewes today - we're calling for urgent investment in biomedical research on ME & talking about its devastating impact on people from all walks of life. 📢💥
#pwME #canyouseeMEnow
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Labour MP now speaking at the #MillionsMissing demo - echoing the call for more funding for #MEcfs - but saying what's needed is far more than just research including fully implementing new NICE guidelines ESP the DWP
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Tremendous turnout for International ME/CFS Awareness Day in Sydney.
Pleasure meeting NSW Greens MP . Look out for that in an upcoming vlog!
Great to see a lot of fellow sufferers, carers, advocacy partners & new friends 💙 #MillionsMissing #MECFS #MEaction #MEANA
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