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  1. 14 lut 2020
    W odpowiedzi do

    Thank you so much for sharing your EDS stories. Too many people out there have no idea what the disorder is or what it means for someone to suffer from it

  2. Thx for all the love and support. Nothing compares than having someone to lean on in times of trouble in life. Thank you all for taking the time to care about me and supporting me on my journey. 🦓

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  3. 22 lut 2020

    To whomever needs to head this: and even L-HSD are not lesser than and can affect the whole body and multiple systems. Sincerely, A non-bendy Zebra with digestive and heart conditions.

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  4. 28 lut 2020
  5. 12 lut 2020
    W odpowiedzi do

    I’m so happy that is open about her EDS and is helping bring light to “invisible illnesses” (in quotes because that’s a bs saying, just because you can’t see it DOES NOT mean it’s not real!) I love you Ki! You’re so strong

  6. 8 lut 2020
    W odpowiedzi do

    You can always do charity fundraising for EDs Awarness... just saying

  7. 28 lut 2020
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  8. 5 lut 2020
  9. 29 lut 2020

    Making an impact, raising my voice and living life the best way I can.

  10. W odpowiedzi do

    Good masks are sold out. I wear this N99 filter mask in high risk situations because I am , immune deficient with . My immunologist also recommended I put coconut oil in my nostrils to keep them moist & reduce chance of viruses/flu being able to attach/attack.

  11. 12 lut 2020
    W odpowiedzi do

    Your fellow Zebras are behind you 🦓 Keep fighting!

  12. 26 lut 2020
  13. 23 lut 2020
  14. 16 lut 2020

    that people like have to face bullying and crulty because there is so little awearness of EDS (even in the medical profession) and people are unwilling to educate themselves before talking out about things they dont understand!

  15. 26 lut 2020
    W odpowiedzi do
  16. 29 lut 2020

    If you have a rare disease, please speak up and spread the word!!! You never know who you might help. 😍😊

  17. 6 lut 2020
  18. 4 lut 2020
  19. 1 lut 2020
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  20. 28 lut 2020

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