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Thank you so much for sharing your EDS stories. Too many people out there have no idea what the disorder is or what it means for someone to suffer from it
#ZebraStrong -
Thx for all the love and support. Nothing compares than having someone to lean on in times of trouble in life. Thank you all for taking the time to care about me and supporting me on my journey.
#EDS#POTS#MCAD#Trifecta#raredisease#awareness#zebrastrong
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To whomever needs to head this:
#HSD and even L-HSD are not lesser than#hEDS and can affect the whole body and multiple systems. Sincerely, A non-bendy#hypermobile Zebra with digestive and heart conditions.#ZebraStrongPokaż ten wątek -
Getting ready to show off my stripes tomorrow.
#ShowYourStripes#RareDiseaseDay#RareDiseaseDay2020#ZebraStrong#EDS#EhlersDanlosSyndromehttps://twitter.com/rarediseaseday/status/1233336077898964993 …
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I’m so happy that
@jameelajamil is open about her EDS and is helping bring light to “invisible illnesses” (in quotes because that’s a bs saying, just because you can’t see it DOES NOT mean it’s not real!) I love you Ki! You’re so strong#zebrastrong -
You can always do charity fundraising for EDs Awarness...
#zebrastrong just saying -
I'm celebrating my stripes today!
#zebrastrong#eds#RareDiseaseDay#FridayFeelingpic.twitter.com/AXWNCqNHBW
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Thank you. I felt hopeful for the first time in several years.
#primaryimmunodefiency#RareDiseaseDay#spoonie#thinkzebra#zebrastrong
https://twitter.com/raredisease_in/status/1219544965195255808 …
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Making an impact, raising my voice and living life the best way I can.
#rarediseaseday#edsawareness#eds#zebrastrong#showyourstripespic.twitter.com/TyksiWCafW
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Good masks are sold out. I wear this N99 filter mask in high risk situations because I am
#zebrastrong, immune deficient with#CVID. My immunologist also recommended I put coconut oil in my nostrils to keep them moist & reduce chance of viruses/flu being able to attach/attack.pic.twitter.com/LY8lYSqoRK
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Your fellow Zebras are behind you
Keep fighting! #zebrastrong#letsallbealittlekinder -
#RareDiseaseDay is just 3 days away! See what patient organizations around the world are doing to raise awareness: http://rarediseaseday.org



#showyourrare#rarediseaseday2020#zebrastrong#primaryimmunedeficiency#immunodeficiency#cidp#lamberteaton#pidd#rarediseasepic.twitter.com/FoRXd1Mn6C
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Being bendy enough to touch your toes isn't always a good thing.
#ehlersdanlosawareness#hypermobility#edsawareness#ehlersdanlos#ItsOurTime#zebrastrong#dazzlefam
https://www.abc.net.au/news/health/2017-11-09/being-bendy-enough-to-touch-your-toes-isnt-always-a-good-thing/9125906 … -
@TheLastLeg#IsItOkay that people like@jameelajamil have to face bullying and crulty because there is so little awearness of EDS (even in the medical profession) and people are unwilling to educate themselves before talking out about things they dont understand!#ZebraStrong -
It's terribly frustrating, more
#ehlersdanlossyndromes awareness & education is so desperately needed!
#ehlersdanlos#edsawareness#hypermobility#shareyourstory#ehlersdanlossyndrome#hEDS#EDS#POTS#MCAS#RareDiseaseDay2020#hsd#dazzlestrong#ItsOurTime#zebrastrong
pic.twitter.com/T7qJZ6874F
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If you have a rare disease, please speak up and spread the word!!! You never know who you might help.

#raredisease#rarediseaseday#hypermobileehlersdanlossyndrome#ehlersdanlossyndrome#hEDS#EDS#zebrastrong pic.twitter.com/pUv4OYuxjG
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Look who's back and working on building a following again! Get ready for this nobody to make 2020 her year!
#NewProfilePic2020#model#instamodels#altmodel#modeljobsearch#EhlersDanlosSyndrome#fibromyalgia#chronicpainwontstopme#zebrastrong#edswarrior#chronicallyillmodelpic.twitter.com/RONLBJGOxJ
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The complexity of being diagnosed and then living with
#EDS or#hypermobilityspectrumdisorders and being#zebrastrong https://www.instagram.com/p/B7_0058A53-/?igshid=1e3fnwa7ztlkh …pic.twitter.com/UQ2MtwN63v
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Join in on the global campaign this
#RareDiseaseDay and help raise awareness!#showyourrare#rarediseaseday2020#zebrastrong#primaryimmunedeficiency#immunodeficiency#cidp#gbs#lamberteaton#pidd#raredisease#chronicillness#rarediseaseawareness#korumedicalpic.twitter.com/KC1yH1IRZS
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