We’re making the #MillionsMissing from society due to #mecfs visible on #MEAwarenessDay.
Great turn out in Manchester, UK 👠👟👞😎👍🏼
We need better awareness, more biomedical research, and equal access to care for #pwme.
I’ve slept for 60+ hours over the past 72 hours. The irony is not lost on me that I slept through yesterday, ME/CFS Awareness Day, because of this damn illness.
#TimeForUnrest#canyouseeMEnow#MillionsMissing
After being a patient for over 3 years, my doc literally still doesn't know what #mecfs is.
Last visit, he 'misplaced' the paperwork I gave him explaining it.
Too ill to find yet another doc. Maybe one day soon. 😷#MillionsMissing#TimeForUnrest
There weren't any big #MillionsMissing events near me, so my mom and I made a couple signs and set ourselves up near some stop signs. A lot of people looked! It's good to know we made a bit of a difference. #canyouseeMEnow#TimeForUnrest
Immensely grateful to Kathryn Fox, who suffers from ME/CFS, for mustering the strength to present at the Women’s Health Summit. #healthequity4her#TimeForUnrest#NHWH
Every day people with #ME wait for #NINDS to fund enough scientists to save our lives and reverse disability. And wait. And wait. And wait. #TimeForUnrest
Everyday #NINDS-funded scientists contribute to saving lives and preventing disability. It starts with basic #research discoveries that decades later lead to #therapies. New website tracks contributions over time. http://bit.ly/2nZ7VQT, http://bit.ly/2Epd2Ed