Search timeline

New study: "At 3-6 mo. after mild/asymptomatic SARS-CoV-2 infection, virus-specific antibodies in saliva were substantially induced signifying a strong reactivation of latent viruses (EBV, HHV6 and HERV-K) ... #MECFS antibody responses were significantly stronger" #LongCovid 1/
FIGURE A: Comparison within each cohort (healthy donors vs ME/CFS) based on IgG, IgM, and IgA antibody response. Shows COVID-19 triggered reactivation of EBV, HHV6 and HERV-K both in ME/CFS and healthy donors, with more pronounced response in ME/CFS.
Only antibody responses with statistically significant differences are displayed on charts.
7
378
Show this thread
Woman who had #MECFS for 14 years is in longterm remission (5+ years) thanks to the chemotherapy she needed for breast cancer.
51
695
PLEASE do everything you can to avoid covid and #LongCovid because it's unlikely you can even begin to comprehend the amount of gaslighting you will experience from medics. Just ask *anyone* with #LongCovid and #MECFS and they will tell you! 😷πŸ§ͺπŸ’¨πŸ’‰πŸͺŸ
2
54
Wie man sich selbst die mΓΌhselige jahrelange Arbeit, das Krankheitsbild aus der Psychoecke zu holen, selbst wieder zunichte macht…: warum macht ausgerechnet die bei so einer ΓΌberflΓΌssigen GegenΓΌberstellung ΓΌberhaupt noch mit? - DAS ist keine Diskussion wert!#MECFS
Image
1
4
πŸ¦™5 Ob ich von #mecfs in meinem Studium schonmal gehΓΆrt habe oder diese Erkrankung kannte? Nein. Und bis heute bin ich fassungslos, wie das sein kann. Was fΓΌr eine VersorgungslΓΌcke vorhanden ist. FΓΌr mich ein großer Skandal. Aber wer nicht laut sein kann, wird nicht gehΓΆrt.
9
667
I never imagined that at the age of 35 I would be fully disabled by the exhaustion and pain of #MEcfs. I was equally stunned by the discovery that others could, and often would, simply refuse to acknowledge the reality of my suffering. #MEAwarenessHour
9
359
"my daughter died - the system does not work... we have a problem with the medical establishment, how at 27 you die from ME has to be answered" says Sarah Boothby whose daughter Maeve died of #MEcfs last year #MillionsMissing
Image
5
487
I'm having a very hard time right now, but this is hope worth letting myself give in to. I burst into tears in fact. Thank you Whitney #mecfs
Quote Tweet
ME/CFS featured on the front page of @sfchronicle! Many thanks to the brave #pwme @DafoeWhitney, who gives reporters a glimpse of what life with severe #MECFS looks like behind closed doors. In doing so, Whitney raises awareness of the realities of this disease.
Show this thread
Image
11
I wish I could show up to just one moment of my life as my whole and healthy self. And not as this shell of a man that always appears in my stead. #MECFS
11
321