New study: "At 3-6 mo. after mild/asymptomatic SARS-CoV-2 infection, virus-specific antibodies in saliva were substantially induced signifying a strong reactivation of latent viruses (EBV, HHV6 and HERV-K) ... #MECFS antibody responses were significantly stronger" #LongCovid 1/
, who gives reporters a glimpse of what life with severe #MECFS looks like behind closed doors. In doing so, Whitney raises awareness of the realities of this disease.
PLEASE do everything you can to avoid covid and #LongCovid because it's unlikely you can even begin to comprehend the amount of gaslighting you will experience from medics.
Just ask *anyone* with #LongCovid and #MECFS and they will tell you!
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Wie man sich selbst die mΓΌhselige jahrelange Arbeit, das Krankheitsbild aus der Psychoecke zu holen, selbst wieder zunichte machtβ¦: warum macht ausgerechnet die
π¦5 Ob ich von #mecfs in meinem Studium schonmal gehΓΆrt habe oder diese Erkrankung kannte? Nein. Und bis heute bin ich fassungslos, wie das sein kann. Was fΓΌr eine VersorgungslΓΌcke vorhanden ist. FΓΌr mich ein groΓer Skandal. Aber wer nicht laut sein kann, wird nicht gehΓΆrt.
I never imagined that at the age of 35 I would be fully disabled by the exhaustion and pain of #MEcfs. I was equally stunned by the discovery that others could, and often would, simply refuse to acknowledge the reality of my suffering. #MEAwarenessHour
"my daughter died - the system does not work... we have a problem with the medical establishment, how at 27 you die from ME has to be answered" says Sarah Boothby whose daughter Maeve died of #MEcfs last year #MillionsMissing
ME/CFS featured on the front page of @sfchronicle!
Many thanks to the brave #pwme@DafoeWhitney, who gives reporters a glimpse of what life with severe #MECFS looks like behind closed doors. In doing so, Whitney raises awareness of the realities of this disease.
I wish I could show up to just one moment of my life as my whole and healthy self. And not as this shell of a man that always appears in my stead.
#MECFS
Yes, medical professionals must be taught accurate info about illnesses like #MECFS#POTS#fibro#Lyme in school, & when they arenβt itβs a problem.
But if you graduated 5-10+ yrs ago, you canβt blame school anymore. Read the literature. Patients do. #LongCovid