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s_r_constantin's profile
Sarah Constantin
Sarah Constantin
Sarah Constantin
@s_r_constantin

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Sarah Constantin

@s_r_constantin

Math/ML/data-science person now working on solving aging...and helping with COVID19?! Founder, LRI and Daphnia Labs. Married to @oscredwin

Be
srconstantin.posthaven.com
Joined February 2019

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    1. Sarah Constantin‏ @s_r_constantin May 6
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      I actually *agree* with @Dereklowe that most attempts to make medicines that bypass the regulatory system are crap. And I appreciate his work in explaining to the public *why* they’re crap.

      1 reply 0 retweets 4 likes
      Show this thread
    2. Sarah Constantin‏ @s_r_constantin May 6
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      The *ethical* position I take (which I know most people don’t agree with) is that you have a right & responsibility to decide for yourself what is crap. And if you want to take risks with your own health, that’s your business.

      5 replies 3 retweets 10 likes
      Show this thread
    3. mrgunn‏ @mrgunn May 6
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      Replying to @s_r_constantin

      Thanks for giving @Dereklowe a deserved signal boost. My thoughts have gone in a similar direction as yours, but with a bit of collectivism on responsibility for making information available for deciding what is crap.

      1 reply 0 retweets 0 likes
    4. mrgunn‏ @mrgunn May 6
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      Replying to @mrgunn @s_r_constantin

      Conditional on many people being unable or unwilling to decide for themselves (maybe they'd rather spend their time thinking about other stuff!), my ethical position is that it's not right to leave a guidance vacuum, because there's any number of hucksters that will fill it.

      2 replies 0 retweets 1 like
    5. Sarah Constantin‏ @s_r_constantin May 6
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      Replying to @mrgunn

      I think guidance is really helpful! It’s a public service to provide it. It just shouldn’t be a monopoly. Any more than the US should establish a religion just because spiritual guidance is valuable.

      1 reply 0 retweets 0 likes
    6. mrgunn‏ @mrgunn May 6
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      Replying to @s_r_constantin

      I'm confused. There are some places where standards of practice are more authoritarian than I would like, but there aren't guidance monopolies. What are you thinking of here?

      1 reply 0 retweets 0 likes
    7. Sarah Constantin‏ @s_r_constantin May 6
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      Replying to @mrgunn

      Which drugs can be legally marketed or imported, which manufacturers can make drugs, etc, is decided by a monopoly.

      2 replies 0 retweets 0 likes
    8. Anais-9  😷‏ @anaisnein9 May 6
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      Replying to @s_r_constantin @mrgunn

      I think you’re talking about something more like clinical guidelines but written for laypeople, which is an exciting if daunting idea. The challenge is enormous.

      2 replies 0 retweets 0 likes
    9. Sarah Constantin‏ @s_r_constantin May 6
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      Replying to @anaisnein9 @mrgunn

      Oh that is super hard, and I don’t think it’s necessarily needed. It’s reasonable to outsource medical decisions to professionals you trust.

      1 reply 0 retweets 1 like
    10. Anais-9  😷‏ @anaisnein9 May 6
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      Replying to @s_r_constantin @mrgunn

      But I’m having to explain whom to trust and whom not as much! There isn’t a shortcut for that! I’m about to make a reliables Twitter list for my coworkers, who work in complex health comms and are still losing their balance p regularly. Idk how you ‘authorize the authorities’

      2 replies 0 retweets 2 likes
      Sarah Constantin‏ @s_r_constantin May 6
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      Replying to @anaisnein9 @mrgunn

      You have more people doing the same job as you! And they’ll come to different conclusions! p l u r a l i s m.

      8:55 AM - 6 May 2020
      • 1 Like
      • Anais-9 😷
      1 reply 0 retweets 1 like
        1. New conversation
        2. mrgunn‏ @mrgunn May 6
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          Replying to @s_r_constantin @anaisnein9

          What adds complexity here is how specialized parts of our lives have become. I had to defer knowing about whole swaths of life to become a domain expert in biomedical science. I have to trust that those people doing those things I don't know about are handling it.

          2 replies 0 retweets 2 likes
        3. Sarah Constantin‏ @s_r_constantin May 6
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          Replying to @mrgunn @anaisnein9

          True! Specialization is fine & good. We need mechanisms besides object-level knowledge to evaluate trustworthiness. (Track records, journalism, social proof, and lawsuits are examples.)

          2 replies 0 retweets 0 likes
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