1/ An ask for help: Some close friends had a baby. Baby Lydia has a serious genetic mutation which makes her very unwell. Without intervention she will be a vegetable her whole life.
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2/ If you or anyone you know could help connect around gene therapy opportunities please DM me and I will connect you. The parents are committing substantial financial resources to help Lydia and other children with a similar mutation.pic.twitter.com/JO6eWtGokD
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Replying to @dksf
I don't know her personally but Sarah Constantin https://srconstantin.wordpress.com/ used to work on this kind of stuff.
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ah! @SarahC20249232
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on it, thanks!
10:52 PM - 27 Feb 2019
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