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@redditchrachel please please support this. I live in Redditch, my son has this rare disease PKU. He is currently doing Kuvan drug trial... we really need your support. This disease and drug has changed all of our family lives. 
https://twitter.com/pkufamily/status/999227808663654400 …
So sorry to hear this Amy, please write to me with full details and I will do whatever I can.
That is great thank you. I will do as soon as we return from holiday x
Also I remember the debate @vickyford led in Parliament on this rare disease. I will be happy to join forces.
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