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Prikvačeni tweet
Book your tickets now for the Rare Film Festival Awards Ceremony at
@RegentStCinema on 10 February 2020! Get yours here: https://www.eventbrite.co.uk/e/rare-film-festival-2020-tickets-86127113515 …#rarefilmfestivalpic.twitter.com/QRTKAXIWXYHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Are you satisfied with the healthcare you receive for your
#raredisease? Do you think your healthcare is well organised? Share your views via the new#RareBarometer H-CARE Survey: http://tiny.cc/h-care pic.twitter.com/YX3yewixtl
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Today we acknowledge all our patient organisations that support people affected by rare cancers. See them here: https://www.raredisease.org.uk/supporters/
#WorldCancerDay
#rarediseasepic.twitter.com/anDzDZwwMO
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Does your company want to come to
#RarefilmFestival? We have just released new tickets due to high demand! Get them before they're gone: https://www.eventbrite.co.uk/e/rare-film-festival-2020-tickets-86127113515 …pic.twitter.com/LFRmqUJPnJ
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Want to get involved in
#RareDiseaseDay this year and take up a new challenge? Email jan.bochinski@geneticalliance.org.uk to find out about fundraising.#rarediseasepic.twitter.com/qn9aOrdBmt
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David is the only person in the UK with the
#raredisease, occipital horn syndrome. He discusses his experience of having an invisible illness and his hopes for the future in@MetroUK https://metro.co.uk/2020/01/30/can-isolating-person-uk-rare-disease-12155033/ …#IAmNumber17Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Rare Disease UK proslijedio/la je Tweet
Also very pleased
@JDBakewell mentioned our work with@GeneticAll_UK on#GenomeEditing terminology, when introducing yesterday's@UKHouseofLords debate Transcript at https://bit.ly/2S6EdYE Our work on terminology can be read at https://www.progress.org.uk/genomeediting & https://doi.org/10.1093/bmb/ldy015 …pic.twitter.com/8hv4DfCg3U
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Got your tickets for
#rarefilmfestival yet? Hurry as spaces are limited! http://ow.ly/djdV50y7Nyq#rarediseasepic.twitter.com/IKp9M0vmGy
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For
#RareDiseaseDay this year we are hosting three receptions across the UK in Cardiff, London and Edinburgh to raise awareness of#raredisease.http://ow.ly/SSZz50y7NsbHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Rare Disease UK proslijedio/la je Tweet
.
@rarediseaseuk is holding a film festival to mark the occasion of#RareDiseaseDay 2020! What kind of event are you organising in your country?https://twitter.com/rarediseaseuk/status/1220275001653432320 …
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Looking to kick-start your career in fundraising and help support the
#raredisease community? Apply for our Grants and Trusts Fundraising Intern post. Hurry as applications close at 9:00 tomorrow morning! https://www.geneticalliance.org.uk/news-event/we-are-recruiting-fundraising-intern/ …pic.twitter.com/ru99jlewbt
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Are you interested in showcasing your research to 850+ rare disease representatives? Submit a poster abstract to
#ECRD2020 by 10 February on one of eight themes related to#raredisease and orphan drugs. http://ow.ly/V4iQ50y616T pic.twitter.com/I5BVQH3H31
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Find out about the story of David, who has the
#raredisease Cowden syndrome https://youtube.com/watch?v=o2doGe8JZhw&feature=youtu.be&fbclid=IwAR1PKnDml_dau1U9WFH2Aoo94kma1dMdlYAZHWNLlJ9ORenvsoofRxHcwLg …@ptenukiHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tickets to the Rare Film Festival Awards Ceremony are almost sold out! Get your tickets before they're gone: http://ow.ly/1qIH50xX9uY
#rarefilmfestivalpic.twitter.com/nyW1fhhsKY
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Catch up on the story of 18 month old Ethan, who has an undiagnosed condition, and tune into
@BBCSouthNews at 6:30 tonight to find out more https://www.bbc.co.uk/iplayer/episode/m000dp2t/south-today-lunchtime-news-24012020 …pic.twitter.com/MwdKCHXcDg
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Everyone is invited to the UK’s first ever Rare Film Festival on 10 Feb 2020 - an unforgettable night with award-winning films raising awareness of rare diseases. To meet us and the
#raredisease community, buy your tickets here - http://ow.ly/hd5g50xX9pS#rarefilmfestivalpic.twitter.com/vW8PMuYXo6
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We are at the launch of the new campaign we supported,
#IAmNumber17, which calls for the voices of those with#rarediseases to be heard
pic.twitter.com/RnPXVRfKIi
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Do you have a
#raredisease or do you care for someone that does? Let us know your thoughts about#carecoordination in our focus groups.#CONCORDstudypic.twitter.com/2epOwavNLN
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Tune into
@GranadaReports at 13:00 today to see our Chief Executive,@Jayne451 talk about our 1 in 17 campaign
pic.twitter.com/ZnmP6GqHAq
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We worked with photographer Paul Wenham-Clarke on his project showing the lives of siblings affected by
#rarediseases and genetic conditions. https://metro.co.uk/2020/01/10/powerful-exhibition-explores-lives-siblings-affected-genetic-condition-12034201/?fbclid=IwAR2rAjfoKr9A-0gIV0CiWsqh6pg2xQicBkSQovZ9lmIuJWBiRPt8uf-le60#share-item-0-828 …#NationalHugDaypic.twitter.com/rwUJpqxxG1
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The awards are almost here! Industry partners, join us and the rare disease community on 10 February for a night full of inspiring, award-winning films. Purchase tickets here for the Rare Film Festival: http://ow.ly/NQCe50xX9cd
#rarefilmfestivalpic.twitter.com/fgI2T5840B
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