Rare Disease Day

@rarediseaseday

29 February 2020 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases.

Worldwide
rarediseaseday.org
Vrijeme pridruživanja: veljača 2009.
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  1. Prikvačeni tweet
    7. sij

    Out now! Download the official poster for 2020 now available via . Share it today to show your support for the rare disease community!

    5 replies 134 proslijeđena tweeta 221 korisnik označava da mu se sviđa
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  2. prije 34 minute

    Vote for your favourite photo to win the EURORDIS Photo Award! The are held to mark the occasion of Rare Disease Day.

    Vote for your favourite photo to win the EURORDIS Photo Award 2020 by 18 February! Submit your vote at The winning photo will be announced during the EURORDIS Black Pearl Awards ceremony on 18 February.
    3 proslijeđena tweeta 3 korisnika označavaju da im se sviđa
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  3. prije 5 sati

    Did you know? Rare diseases currently affect 5% of the worldwide population. Download, edit and adapt the infographics from . Share them on social media to spread the word about Rare Disease Day on 29 February!

    32 proslijeđena tweeta 39 korisnika označava da im se sviđa
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  4. 4. velj

    Customise your Twitter profile picture with the Twibbon to show your support for people living with a rare disease around the world >>

    10 proslijeđenih tweetova 25 korisnika označava da im se sviđa
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  5. 4. velj

    Getting ready for the big day? Check out the shop to find official merchandise for your events >>

    13 proslijeđenih tweetova 25 korisnika označava da im se sviđa
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  6. 3. velj

    What kind of event do you have planned for ? Let us know in the comments below and share it at !

    5 replies 9 proslijeđenih tweetova 34 korisnika označavaju da im se sviđa
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  7. 31. sij

    Did you know? Rare Disease Day is a global awareness raising campaign promoting equity for all people living with a rare disease. Download and edit infographics from . Share them to spread the word about Rare Disease Day on 29 February!

    1 reply 42 proslijeđena tweeta 59 korisnika označava da im se sviđa
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  8. 30. sij

    Did you know? is an international campaign created with 60 national alliances of rare disease patient organisations from around the world!

    27 proslijeđenih tweetova 74 korisnika označavaju da im se sviđa
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  9. 30. sij

    New! Share the official social media visuals for the 2020 campaign now available to download via The visuals are also available in editable files to be translated.

    60 proslijeđenih tweetova 106 korisnika označava da im se sviđa
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  10. proslijedio/la je Tweet
    28. sij

    SAVE THE DATE! ✍️🗓2/29/20 is 🌏World . Did you know? ➡️300 million people are living with a rare disease worldwide. ➡️There are 6000+ different rare diseases. ➡️72% are genetic. ➡️70% of those genetic rare diseases start in childhood.

    13 proslijeđenih tweetova 11 korisnika označava da im se sviđa
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  11. 29. sij

    How are you getting ready for ? Don't forget to tag us in your photos! Thank you for sharing this from behind the scenes

    Hey - one month to go exactly today but we are getting ready
    5 proslijeđenih tweetova 10 korisnika označava da im se sviđa
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  12. proslijedio/la je Tweet
    29. sij

    On Saturday 29 February trustee Eleanor Burke is hosting a free meetup in Ireland for , at Wynne's Hotel Dublin from 3pm-6pm. Anyone affected by aniridia is welcome. Just contact meetup@aniridia.org.uk to tell us you'll be coming.

    6 proslijeđenih tweetova 8 korisnika označava da im se sviđa
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  13. 29. sij

    The message for 2020 is that rare is many worldwide, rare is strong every day and that rare is proud everywhere! Download the campaign materials at

    105 proslijeđenih tweetova 194 korisnika označavaju da im se sviđa
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  14. 29. sij

    Only 1 month to go until 2020! Find out all the ways you can get involved 

    48 proslijeđenih tweetova 92 korisnika označavaju da im se sviđa
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  15. 28. sij

    . is holding a film festival to mark the occasion of 2020! What kind of event are you organising in your country?

    Everyone is invited to the UK’s first ever Rare Film Festival on 10 Feb 2020 - an unforgettable night with award-winning films raising awareness of rare diseases. To meet us and the community, buy your tickets here -
    1 reply 9 proslijeđenih tweetova 24 korisnika označavaju da im se sviđa
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  16. 27. sij

    ‘We remain hopeful there will be a light at end of the tunnel for worldwide rare disease patients, especially for children.’ Read Swathi’s story about living with >> Tell your own story >>

    15 proslijeđenih tweetova 33 korisnika označavaju da im se sviđa
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  17. 27. sij

    preparations underway in UAE! How are you getting ready for Rare Disease Day 2020? Share your events with us at:

    The organizers from the UAE Rare Disease Society met on 19 Jan to finalize the preparations for the UAE Rare Disease - Family day planned on 29 Feb 2020. Stay tuned 🧬😊
    4 proslijeđena tweeta 20 korisnika označava da im se sviđa
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  18. 25. sij

    5 weeks to go until 2020 on 29 February. Check out this press release for the latest information on this year’s campaign.

    49 proslijeđenih tweetova 90 korisnika označava da im se sviđa
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  19. 23. sij

    Meet Kin Ping who is living with retinitis pigmentosa. Read more about his story at

    6 proslijeđenih tweetova 20 korisnika označava da im se sviđa
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  20. 21. sij

    is about raising awareness for people living with a rare disease around the world. Share your story at to raise awareness!

    1 reply 36 proslijeđenih tweetova 73 korisnika označavaju da im se sviđa
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  21. 20. sij

    ‘I helped create a support network called . This helped me realize that I wasn't alone, and since our group has grown to 200 members’ Read Emilie and Mathilde’s story about living with >> Tell your own story >>

    8 proslijeđenih tweetova 29 korisnika označava da im se sviđa
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