As a reminder of why these bills are so dangerous for patients & bad policy, see, e.g., https://www.nejm.org/doi/full/10.1056/NEJMp1714054 … by @HollyLynchez & @SteveJoffe, https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/2669909?redirect=true … by @ABatemanHouse & @ProfCRobertson, & https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/1910562?redirect=true … by me & @HankGreelyLSJU.https://twitter.com/SteveJoffe/status/997231871602974720 …
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Replying to @pzettler @HollyLynchez and
Of all the people struggling with untreatable illnesses I have been in contact with(100s of emails a month) all of them support Right to Try and more. Many are trying or have tried unapproved treatments. Wondering who all the ethicists talk to that don't support this stuff?
2 replies 1 retweet 0 likes -
Replying to @4LOVofScience @pzettler and
Well, I'm a chronic disease patient as well as an ethicist; I've spent my entire adult life working in health care; & I work with numerous patient groups, pharma groups, and clinician groups who oppose it https://www.asco.org/about-asco/press-center/news-releases/asco-releases-position-statement-access-investigational-drugs …
1 reply 1 retweet 3 likes
Was just going to say @ABatemanHouse will know about patient pespectives! Think bottom line is that there are *definitely* ways to improve access for terminally ill pts & many of us have written about that. RTT is not one of those ways.
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