Setting aside everything else, I have serious concerns about any pay to play “trial.” That’s 1 of the topics to be discussed at this upcoming meeting (https://www.hhs.gov/ohrp/sachrp-committee/meetings/2019-july-30-31-2019/index.html …). There’s a webcast
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Especially a poorly designed pay-to-play trial.
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The fact that Spectrum is doing "both sides" and trying to be neutral on extreme pseudoscience is extremely troubling. Also troubling that they portray autistic hand-flapping as a disease. This isn't the first time. It is time for everyone to stop giving Spectrum clicks.
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“'The trends observed in this study are indicative of potential therapeutic benefits,'” lead researcher Neil Riordan, founder of the Stem Cell Institute, wrote in an email sent to Spectrum by a spokesperson." This article is full of pseudoscience lies. Follow the money.
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This clinic was the largest recipient of crowdfunding $, including for stem cell 'treatments' for autism, in the recent study
@LeighGTurner and I published. Duke and Northwestern showed up too.https://n.neurology.org/content/early/2019/06/21/WNL.0000000000007838 …Thanks. Twitter will use this to make your timeline better. UndoUndo
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The SACHRP discussion should be interesting. One challenge working on this topic was that there are different approaches to paying for access and they are not all clear cut. I’m sorry I’ll miss this meeting!
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This
@TheFSMB report and recommendations on Regenerative and Stem Cell Therapy Practices may be of interest:https://drive.google.com/file/d/1kKGj-Nf6bSXC6_DEpHWLHLtXC23pZOl7/view?usp=drivesdk …Thanks. Twitter will use this to make your timeline better. UndoUndo
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