7.1) Since then, I've been dealing with medicaid. With a doctor who thinks, since I only need accommodations sometimes, I shouldn't have them ever. I've been trying to figure out how to accurately answer "why do you want a part time position?" without disclosing disability.
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7.2) I've been lucky to have financial support from my family and my partner. It would be so much worse if I didn't. But it's hard even with that.
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7.3) So that's where I'm at now, getting very occasional interviews for part-time jobs I can do, which exist and are sometimes even relevant, but are full of people working two of them at a time to "make full time".
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7.4) I'm trying to decide when it's worth overhauling my entire medical setup to get adequate care vs keep not rocking the boat, because at least right now when I accidentally run out of brain meds and call my Dr office crying they're sympathetic and call in a refill ASAP.
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7.5) I'm trying to spread what little useful knowledge I have and participate in organizing when I can't convince myself to leave the house half the time because I know for Joe Average Human it's worse than it is for me, "it" being capitalism and healthcare access both.
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Meli Retweeted Medicare for All
8) So: US healthcare systems radicalized me as a patient, and also as someone who's glimpsed them from a few more angles. They're rotten profit-driven shithouses to the core, and the worst part? they're full of people trying their best to help.https://twitter.com/AllOnMedicare/status/1124042436345569286 …
Meli added,
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9.1) We chronically ill folks can't divest from harmful systems that keep us alive, but we can supplement them with actual care. Reading
@brownstargirl's Care Work instilled a hope in me that had been missing for a long time.http://brownstargirl.org/care-work-dreaming-disability-justice/ …1 reply 1 retweet 9 likesShow this thread -
9.2) Be the friend who knows who has extra antidepressants to bridge the gap of someone's accidental withdrawal. Or the one who can pick up takeout or venmo a couple extra bucks to cover someone's copay or surgery or whatever.
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9.3) Being a disabled person supporting other disabled people is a messy, and like all modes of justice it will always be incomplete but it is worth doing. Stay alive, help others stay alive, "no ethical consumption under capitalism" applies to medical care. That's all I got.
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Should I turn this into an article/blogpost? [poll]
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You absolutely should as I’m sure you have much more to say, but I think you’ can get more eyes on this thread.
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Replying to @peidran
Good point. I won’t be deleting the thread or anything, but might write it up tomorrow with more examples and things.
0 replies 0 retweets 1 likeThanks. Twitter will use this to make your timeline better. UndoUndo
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