Dr. Ron Davis shows off #Stanford's Genome Center to U.S. Congressman Jack Bergman #ME bit.ly/2LJMKRb via
PANDORA Org.
@pandoraorg
A 501c3 org dedicated to restore quality of life for individuals with Neuro-endocrine-immune diseases (NEIDs) in the U.S. & beyond.
PANDORA Org.’s Tweets
Pres. , met with Sen. Wayne Schmidt to discuss MI Senate Resolution 20 about ME. Sen. Schmidt is supporting the resolution! & gave testimony to the Senate Health Policy Committee last week. SR20 is moving back to the floor for a vote soon.
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To watch NIH Videocast, please follow the links below to view the live meeting.
Day One (April 4): videocast.nih.gov/summary.asp?li
Day Two (April 5): videocast.nih.gov/summary.asp?li facebook.com/PANDORAORG/pos
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With ME and orthostatic intolerance we might find ourselves on the floor more often than we care to be. This video has excellent MacGyver style tips on how to get... youtube.com/watch?v=4ETgQD
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Want your doctor to be more knowledgeable about ME? Offer them free CME's. Print this handout and equip him/her with sensible tools to better assess, diagnose and manage symptoms of #MECFS. #nationwide #FreeCME #PandoraOrg #BatemanHonrneCenter pandoraorg.net/blog/f/cme-han
Share this link with your healthcare providers to earn free, online CME's, and to give them tools to better assess, diagnose, and treat #ME #CFS patients.
pandoraorg.net/education pandoraorg.net/education
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PRESS RELEASE: Unprecedented Continuing Medical Education on ME/CFS Brings Relief to Doctors and Patients Alike
LANSING, Mich. - Feb. 25, 2019 - PRLog -- Michigan State Medical Society (MSMS) released... msms.org/Education/On-D
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Unprecedented continuing medical education on ME/CFS brings relief to doctors and patients alike prlog.org/12756203
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Unprecedented continuing medical education on ME/CFS brings relief to doctors and patients alike bit.ly/2tE2V6U #Consumer
Do you know a medical student or practicing medical provider? #MEAction is offering a total of 4 scholarships...
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“...Collins and the have accelerated research funding, but only to a level of neglect that the ME/CFS field is very familiar with.” #fundusnow #250Milliondollars
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Happy Birthday, Donna Nowak Robillard! You are our Valentine wrapped up in a heart quilt of love. You and your team of quilters are appreciated more than we can express. ❤️ facebook.com/PANDORAORG/pos
Thank you Donna and Lori for fundraising for us. facebook.com/PANDORAORG/pos
Accessing food can be very difficult for those with #ME. We just don't have the strength to open lids on jars. These handy openers were sent to someone who has severe ME. #PandoraDelivers just doesn't deliver short... facebook.com/PANDORAORG/pos
Help Pandora Org by signing up for iGive. $3 New Member Bonus! Join by 2/23, install the iGive Button, and keep it for 90 days to earn a $3 bonus for PANDORA Org. iGive.com/inzP9F #iGiveDoYouhttps igive.com/tvPgNwQ
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Final numbers are in. You gave $3670 from Giving Tuesday to the end of the year. This includes the $1000 in matching funds. Thank you! ❌⭕️
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FYI: I just received an email from LARA. Effective immediately, Gabapentin (Neurontin) is now a schedule 5 controlled substance.
Lori Kroger, RN substance.is
You can still donate to this fundraiser until 11:29 pm tonight. Your gifts go directly to help the needs of people living with ME. Pandora Org is unique because we provide a need no other... facebook.com/story.php?stor
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Give a gift of love this holiday season. Meals and quilts are being delivered to severe ME patients. facebook.com/story.php?stor
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We want to thank the 42 members of Congress who signed the bipartisan letter to DHHS Secretary, Azar, in support of ME/CFS. Thank you to Team Michigan for writing and calling Senator Debbie Stabenow, who co-signed the letter. Her office sent the...
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The Michigan Team made it into the Community Roundup. Read about Pandora Org's advocacy work. meaction.net/2018/12/19/com
Your donations at work.
Pandora had the privilege to hand deliver this quilt. It was a family affair. The recipient is the niece of the quilter who pieced the top and the cousin of the long arm quilter who... facebook.com/43354982370/po
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A Christmas present arrived at our quilting headquarters. Laura Campbell sent us 12 pounds of quilting fabric. In lay language, that is hundreds of dollars of fabric if it was bought new.
Most of the fabric... facebook.com/43354982370/po
The deadline for your elective officials to co-sign the letter to HHS about shutting down CFSAC has been extended to Friday, Dec. 7. facebook.com/PANDORAORG/pos
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D.G “I’m crying copious tears at the goodness I’ve experienced. In a blessed country currently so divided, I received an overwhelming lovely quilt from people I’ve never met in person. You show so much human warmth, love and empathy. I cannot thank you enough!’
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We are 1/3 of the way to our goal of $3000 for the day when you combine the total of all fundraisers. Several people have initiated their own fundraiser for Pandora Org. So far a total of $1000 has been raised! Thank you to Nancy, Karen, Lori and... facebook.com/story.php?stor
Facebook and Paypal will start matching donations at 8 am. With an angel donors matching funds up to $1000 that means your donations are TRIPLED. facebook.com/PANDORAORG/pos
Check out our blog post and website. Then, on #GivingTuesday donate on Pandora Org's fundraiser to TRIPLE your donations. facebook.com/donate/2175251 pandoraorg.net/blog/f/your-im
The second meeting of the day took place at Michigan Department of Health and Human Services. It was a very productive day and things are moving forward for Michigan. facebook.com/PANDORAORG/pos
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A simple copy and paste email makes this action very easy. Michigan has a resolution about ME being reviewed in the... mailchi.mp/63c016cc66f9/m
CALL TO ACTION: If you live in Michigan, or have a loved one that lives in Michigan with ME, please take action so a Resolution on ME/CFS can be passed in the State of Michigan. HR0388... mailchi.mp/63c016cc66f9/m
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41 clinicians and scientists sign a letter supporting Cochrane's decision to temporarily withdraw the Cochrane GET Review for Graded Exercise Therapy. virology.ws/2018/10/23/a-s
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#CDC, Yes...because this is so much more urgent than #ME patients getting treatment and such. #palmplant
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View our new, user friendly website. Sign up for the latest news while you're visiting the site. We have some exciting news coming soon that you won't to miss. pandoraorg.net pandoraorg.net
Thank you, Donny Moss, animal rights activist, for protesting and interrupting Per Finks presentation at Columbia University. You did all of us proud! He joined our fight because we are too sick to fight for... facebook.com/PANDORAORG/pos
