By late morning I'm starting to wake up. I have a migraine aura all the time, but thanks to my meds my baseline is just "headache" (2-3 on my pain scale).
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During the afternoon I'm having a lot of trouble concentrating. Whether this is a neurological thing or a depression thing or a med side effect thing or just an "I suck" thing is unclear.
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I'm able to focus more as the afternoon turns into evening, but my headache is also ratcheting up. Definitely a 4 now. Could be described as "searing." The lights definitely hurt. When it hits a 5 I'll go home.
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For calibration of my pain scale: Appendicitis was at its worst a 5. Wisdom teeth removal was 3. I once broke some bones in my foot and went caving the next day.
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In the evening, my officemate leaves. This means that I can close my office door and lie on the floor for a while. BEST THING EVER.
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Like all ECRs, I'm stressed about work, so I stay in the office until I need to go home and take meds. Turns out this was too late. My walk home is brutal. I'm having a lot of trouble balancing.
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I eventually finish dragging myself home. I take my meds and crawl straight into bed. I had planned to cook, but nope. I'll get up in a few hours and eat some random vegetables, but for now?
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This is, for me, a great day. I'm holding down a (very flexible) full-time job. At no point was I screaming in pain. These days I rarely pass out or throw up.
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A few years ago, I was at a point where I would only leave the house to interact with the healthcare system. I'm grateful for what I have. I'm aware it could -- and indeed someday will -- get a whole lot worse.
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But that doesn't change the fact that I'm still in pain, all the time. That I have to perfectly balance out my symptoms and my med side effects in order to achieve some semblance of a normal life.
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Sending you so much love and many vibes of support. 

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