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The New York Times
The New York Times
The New York Times
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@nytimes

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The New York TimesVerified account

@nytimes

Where the conversation begins. Follow for breaking news, special reports, RTs of our journalists and more. Visit http://nyti.ms/2FVHq9v  to share news tips.

New York City
nytimes.com
Joined March 2007

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    The New York Times‏Verified account @nytimes Apr 12

    Angel, 23, suffers from a medical condition that causes excruciating pain throughout her body. Doctors don’t have a diagnosis. Have you heard of these symptoms? https://nyti.ms/2EFzOmL pic.twitter.com/ZIk8WH7dAj

    10:00 AM - 12 Apr 2018
    • 208 Retweets
    • 256 Likes
    • Alexistori Isaac Garcia Kattleya Dal. 🌻Sunflower🌻 Stephanie Amaosaa dacia sykes Jaz Yessica
    48 replies 208 retweets 256 likes
      1. The New York Times‏Verified account @nytimes Apr 12

        We’re asking you to help solve this medical mystery. Your responses may be featured in an upcoming Netflix documentary series.https://nyti.ms/2IQNIoj 

        16 replies 81 retweets 138 likes
        Show this thread
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      1. New conversation
      2. ElinP‏ @ElinPac Apr 12
        Replying to @nytimes

        Intermittent acute porphyria.

        1 reply 0 retweets 5 likes
      3. Glen Jones‏ @jimbobray Apr 12
        Replying to @ElinPac @nytimes

        Agree although I've never had the condition.

        0 replies 0 retweets 5 likes
      4. End of conversation
      1. New conversation
      2. Cindy Denton‏ @Cyn7507 Apr 12
        Replying to @nytimes

        Possible diagnosis? Alkaptonuria Black urine disease, black bone disease, alcaptonuria https://en.m.wikipedia.org/wiki/Alkaptonuria … 1 of 2 tweets...

        1 reply 0 retweets 5 likes
      3. Cindy Denton‏ @Cyn7507 Apr 12
        Replying to @Cyn7507 @nytimes

        I don't have this disease; but hv something similar reg amino acids. When I get a build up of amino acids that accumulates in my muscles, I get excruciating whole body pain, very dark urine & I developed kidney stones after a period of time of having this amino acid issue. 2of2

        0 replies 0 retweets 6 likes
      4. End of conversation
      1. Pat Clark‏ @Montman76 Apr 12
        Replying to @nytimes

        Try smoking some marijuana.. or some CBD oil.

        0 replies 0 retweets 10 likes
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      1. New conversation
      2. Maris Crane‏ @feminumz1 Apr 12
        Replying to @nytimes

        I'm supposed to use my last free article to save her though?

        1 reply 0 retweets 4 likes
      3. Thomas Londoño‏ @ThomasLondono69 Apr 13
        Replying to @feminumz1 @nytimes

        Just set your safari app to private tab so when you open an article tap the safari icon at the bottom right. Problem solved

        0 replies 0 retweets 2 likes
      4. End of conversation
      1. mabel floyd‏ @beelvia Apr 12
        Replying to @nytimes

        I hope you find help.

        0 replies 0 retweets 3 likes
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      1. James S.‏ @jsld1975 Apr 12
        Replying to @nytimes

        Why are there no thyroid tests?

        0 replies 0 retweets 3 likes
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      1. Dr Able Lawrence‏ @abledoc Apr 12
        Replying to @nytimes

        Intermittent acute Porphyria

        0 replies 0 retweets 3 likes
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      1. Rex ANA Harrisen‏ @RexHarrisen Apr 12
        Replying to @nytimes

        I have to reTweet this re your health. Please Contact Loma Linda Univ. Hospital. It is run by 7th Day Adventists. Hdqtrs Takoma Pk, MD.

        0 replies 1 retweet 1 like
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      1. glowinthedark‏ @MemeDivison1488 Apr 12
        Replying to @nytimes

        It's Lupus

        0 replies 0 retweets 4 likes
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      1. New conversation
      2. The RealJulietBinitie‏ @RevJulB Apr 12
        Replying to @nytimes

        The devil is a liar. She can trust God for Healing. He is the divine healer

        1 reply 0 retweets 1 like
      3. Kate S‏ @hekatelesedi Apr 12
        Replying to @RevJulB @nytimes

        James 2:14 What does it profit, my brethren, if someone says he has faith but does not have works? Can faith save him? Working toward a diagnosis is the work of which he speaks.

        0 replies 0 retweets 1 like
      4. End of conversation
      1. New conversation
      2. ArtistLike‏ @Artistlike Apr 13
        Replying to @newsjane @nytimes

        No. If I could find her on social media, I’d tell her to watch this:https://youtu.be/wO1gvxIJ64o 

        2 replies 0 retweets 1 like
      3. Tweet unavailable
      4. ArtistLike‏ @Artistlike Apr 13
        Replying to @newsjane @nytimes

        My mother died in January from a cause that was never determined. It wasn’t until she had been starving (literally, 86lb last spring; 75lb in December) for a year that they admitted her and found she had a parasite and another opportunistic infection due to malnutrition.

        2 replies 0 retweets 0 likes
      5. ArtistLike‏ @Artistlike Apr 13
        Replying to @Artistlike @newsjane @nytimes

        She had to be on antibiotics, but she also had an autoimmune condition that they said would require immunosuppressants. That taught me Lyme isn’t the exception: doctors miss a lot, are not capable of figuring out many things. They should have tested her much sooner.

        0 replies 0 retweets 1 like
      6. End of conversation

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