This is heartbreaking, but it's one bad experience. I've been a hospice nurse for 15 years, and most families would tell a different story - a positive story.
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My dad was in hospice for 13 months before he died of liver cancer. My family would not have been able to cope with his illness and decline without hospice. Thank you for your work.
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I'm so very sorry for your loss, but glad that your experience was a positive one. I lost my own dad a year ago, and he chose hospice too. They were such a help to us. I was able to be the daughter, not the nurse.
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Both my parents have died at in-patient Hospice facilities. Nothing is ever perfect, but both received kindness, serenity, and pain control. So much better than a hospital where they won't give pain meds for fear of killing you.
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This was almost identical to our experience. So well-meaning, but for the crisis the ended up being the last 12 hours of my mother’s life, sorely understaffed. My mom suffered, albeit for a relatively short period of time, but needlessly.
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I volunteer for a not for profit hospice. This is far from a typical hospice experience. I hope that for every article like this one there are 2 touting the benefits of end of life care.
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Hospice is a FAMILY'S responsibility----to institutionalize it is to move LOVE OF THE PERSON to love of MONEY
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In VT, every Hospice is usually connected to the county wide non-profit home health agency. It is a strong patient centric model - and leaves less room for for-profits. they do exist, but the NPO's manage the bulk of the surprisingly low utilization in VT.
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It sounds like you may have had a terrible experience with hospice staff during the last days of a close loved one. If that's the case, I'm truly sorry you had to go through that.
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Hospice was a Godsend when my Mom was so ill
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It's sort of this thing that Americans do... we expect that death be painless, then we get upset when there's too much morphine.
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This is sad, but do people understand that death is.. well.. not pleasant no matter how hard you try to make it live up to some made-for-tv movie experience?
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Similar to my experience with my dad's passing. One day he was unconscious and had gurgling breathing. I called hospice in a panic and they refused to come out. "If he dies, then he dies. We'll call the coroner tomorrow."
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Lets instead point a light on the nurse to patient ratio!!! Its very, shall we say...fucked up! This would make a true and great story! Why are we not hearing more on it?!!!
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