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The New York Times
The New York Times
The New York Times
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Where the conversation begins. Follow for breaking news, special reports, RTs of our journalists and more. Visit http://nyti.ms/2FVHq9v  to share news tips.

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    The New York Times‏Verified account @nytimes Sep 12

    6-year-old Kamiyah suffers from a rare mutation in the KCNMA1 gene that causes her muscles to freeze up dozens of times a day. Do you know anyone with this same gene mutation? Tell us.https://nyti.ms/2CQdyuI 

    1:52 PM - 12 Sep 2018
    • 88 Retweets
    • 110 Likes
    • Jennifer Palma Amir Thabiso Bradley(T.BOI) Miffy Donna Radford Edgardo Julia James🥀 Janek TV Stefano Calandra
    12 replies 88 retweets 110 likes
      1. Tom 🇺🇸‏ @TomTom43b Sep 12
        Replying to @nytimes

        We should name whatever mutation makes people anti-White after Sarah Jeong. Maybe SJEONG1?

        0 replies 0 retweets 1 like
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      1. Saint‏ @Saint78113982 Sep 12
        Replying to @nytimes

        No. Look into CBD, though. It's nature's pain killer. I've heard it's better then opioids.

        0 replies 0 retweets 1 like
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      1. james j.m.warhurst45@gmail.com‏ @2painttheworld Sep 12
        Replying to @nytimes

        https://www.gofundme.com/63p369s 

        0 replies 0 retweets 1 like
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      1. New conversation
      2. Casey Cork‏ @clcork Sep 12
        Replying to @nytimes

        Obviously not the same, more the opposite, but my cousin had seizures upwards of every 10 minutes. He now has a Rx for THC drops and he now he only gets them every couple of months. Worth looking in to.

        2 replies 0 retweets 0 likes
      3. Pedro Delgado‏ @pedrodelgado991 Sep 12
        Replying to @clcork @nytimes

        Don't know if its useful for you or not but having him occupied doing g activities that he likes lowers the chances of him getting seizures. Hopes he's better.

        1 reply 0 retweets 0 likes
      4. Casey Cork‏ @clcork Sep 12
        Replying to @pedrodelgado991 @nytimes

        And I just reread your reply. He has activities that he enjoys outside of work

        0 replies 0 retweets 1 like
      5. End of conversation
      1. estephen hartsuck‏ @EHartsuck Sep 12
        Replying to @nytimes

        Weeeeeeeed!!! Natures panacea.

        0 replies 0 retweets 0 likes
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      1. Felipeyabelardo‏ @Felipeyabelard1 Sep 12
        Replying to @nytimes

        Unbelieve...my lord

        0 replies 0 retweets 0 likes
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      1. Barbara Bly‏ @BarbaraBly1 Sep 12
        Replying to @nytimes

        I had a kindergarten student about 10 years ago who would freeze up all muscles. She did this at least once a day. Sometimes it would be just 1 or 2 minutes and times as much as 10 minutes. Very bright. Parents were from Russia and they didn’t see this as medical. Saw behavioral

        0 replies 0 retweets 0 likes
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      1. Jeff Fraser‏ @Bannock_Chef Sep 12
        Replying to @nytimes

        There was a strong youngster from England I believe who 30 by 30 did a story on. Him and his faithful and understanding dog were the focus. His muscles were always contracted. Rather painful. He was nobley tough. Sorry I don’t have more info. Good luck.

        0 replies 0 retweets 0 likes
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      1. NORCOP521‏ @norcop521 Sep 12
        Replying to @nytimes

        Blessings to this 👼.

        0 replies 0 retweets 0 likes
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      1. erinbliss‏ @erinbliss Sep 12
        Replying to @nytimes

        I don’t but I guarantee tRump thinks children like her should be left to die.

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      1. Karin Fox‏ @KarinFox Sep 12
        Replying to @nytimes

        I have shared w/ other disability families

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