Chantelle is back at work and enjoying some quality of life after starting on #Orkambihttps://www.bbc.co.uk/news/av/uk-politics-43459077/chantelle-millward-on-orkambi-drug-for-cystic-fibrosis-patients …
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Orkambi transformed Hannah's life. I've spoken to her and
@chanmillward & Amalie's mum. This is what#Orkambi can do for some with CF. Everyone who is eligible should have the chance to try this drug & Vertex should drop their prices to make that possible:http://www.bournemouthecho.co.uk/news/16089613.Poole_student_with_cystic_fibrosis_battles_to_get_others_the_drug_which_transformed_her_life/ …Thanks. Twitter will use this to make your timeline better. UndoUndo
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They have since patented a twofold Drug which works with the Orkambi, Symdeko. It’s showing wonderful results. It took the ingredients in Orkambi and paired with others. If you have the disease you’d pay anything.
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A modest improvement? Saved her life according to her mother. The Facebook post of this video reached 374,000 viewshttps://www.youtube.com/watch?v=GtatLl1z1i0 …
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Think this article should have pointed out Symdeko a lot more. It has a much better result/ price point associated with it. Besides it also covers more mutations than Orkambi
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Except modest can be life-changing for people with CF; every bit of lung function matters...
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Finally, they are questioning treatments that have little effect and cost are astronomical. That's a good thing.
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This drug was a jumping off point for a drug that’s been shown to have truly amazing effects, and when you live every day with something like
#cysticfibrosis even moderate effects are life changing. -
What does that mean? Does the drug work or not? Jumping off point for a drug that has amazing effects? Where's the drug with the amazing effects? I don't need mumbo jumbo about drugs if it works great if it doesn't why are we spending a fortune for it?
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It does work! As with most medications, people respond differently. But this class of medication is the first to treat the cause of CF, not just the symptoms, so it has done a lot as a jumping off point, too.
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Big Pharma = rapacious bastards.
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This kind of drug pricing should be prohibited. Yes, pharmas spend lots of $$ in R&D, but they get beaucoup tax breaks & subsidies. Additionally, they have no incentive to develop cures. If they did, they’d put themselves out of business, which is why they seldom do that
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Big Pharma trying to bleed the sick dry again.
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