@LisaSandersMD I just submitted a hypothesis and recommendation that I think is worth considering. I've seen it help other people with unusual GI symptoms and Multi-System constellations.
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@UpperRoomRE I'm saddened to hear of the suffering that she's gone through. Sounds frustrating and taxing. I thought of something that I think would be worth a try, especially in light of typical tests being normal. -
also while there are several interesting hypotheses that others have suggested on twitter, I'm sorry that there are many trolls out there that don't have human decency to respect other people's suffering. Hang in there, don't lose hope
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There was a somatic disorder I read about once. It’s usually trauma related. The family I knew that had a child that’s went through it had every test done, but it turned out to be related to the stress of her parents leaving her and breaking up.
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It well could be. When my mother got really sick, my daughter started having a lot of trouble eating and started having panic attacks. One day later when my mom got better she confessed it was all related to her fear of my mom dying
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Exactly overlaps with Trump's campaign/presidency... I know what's up
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Asking Twitter is a bad idea.
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Nothing good can come of this thread
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So disheartening to see some of the replies. When you’re desperate you turn wherever you can. Social media forums have been extremely helpful in that you have access to the world. Maybe someone will see this & have information that could be key. Prayers for an answer

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After exhausting every option thinking out of the box
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Lyme? Bartonella? Some people, I've heard, do well on monolaurin and teasel herb. She should ask her natural health physician. It seems only the CDC recognizes chronic lyme, and lyme coinfections.
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In no way does the CDC recognise "chronic lyme". https://www.cdc.gov/lyme/postlds/index.html …
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I have forwarded this to my friend who is very well connected with specialIst in Pediatric Gastroenterologist. And my prayer to her
in this world we are all connected and responsible on each other so let’s help
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What's even worse - what if these events are brought on by a Neurological misfire - like a sneeze-reflex - don't just consider a biological/parasitical causation... Best wishes!
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Where's Dr. House when you need him....
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Is she Pregnant?
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It’s been going on for 3 years man she would have a child and be better now if that was the case
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Call Dr House.
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