my twin has this, we have Ehler's danlos syndrome.
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For real, genetic condition, symptomatic throughout life, but GI issues for the last 2 years. Hypermobile Oesphagus and Gastroparasesis. MCAD. Laryngospasm. Effortless regurg hours or minutes after.
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Simple genetic testing and family history would have confirmed EDS rite?
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Family history yes, and a VERY specific criteria for H-EDS. Genetic testing is available for certain types. Sadly, they haven't identified the gene for H-EDS but my twin, mother and I all have the signs, FH, and medical history
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some examples: physical features: stretch marks, type of scarring, papules on the (often flat) feet where the fat tears through the epidermis. Even the way your eyelids fold/slant (cant remember the term). Dental crowding. My specialist could subluxate EVERY joint in my body.
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I am sorry to hear that . How do you manage it?
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It's almost a blessing to have a twin going through it to. We support each other when the other one is too unable. We chronic illness you will have times when you are better and times when you are worse.
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That's both heartbreaking that you both have it, and also kind of amazing that you're able to be there for each other. Although you wouldn't wish it on anyone else, it has to help a lot to have someone to go through it with... (I have H-EDS too. And now so does my daughter.)
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I am not saying this as a joke but have they tried medical marijuana because it is known to be the only thing to help chemo patients actually keep food down
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Just don't go to Canada and try to come back because Jeff sessions wants to drug test peoplepic.twitter.com/oTEDWLAYlj
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She needs to smoke weed
Thanks. Twitter will use this to make your timeline better. UndoUndo
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YES... SHE MAY BE HAVING INTESTINAL VASCULAR SPASMS FROM PRINZMETAL'S ANGINA. HEREDITARY, NO TRACE IN C.T. SCANS. CAUSED BY ARTERIAL OR VASCULAR SMOOTH MUSCLE SPASMS. ANY CALCIUM CHANNEL BLOCKER (AMLODIPINE) TREATS PRINZMETAL ANGINA VERY WELL. SHE CAN DISCUSS WITH HER DOCS.
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Unnecessary yelling
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Dysautonomia. 99% sure.
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Well, they tested for POTS and found it positive, so yeah. But treatment didn't help. (Although it doesn't always.)
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I’ve been treated in that hospital. They don’t know much about dysautonomia or treating it. She needs to see a specialist and the biggest problem is that Utah only has 3 clinics capable of treating her (and me) correctly.
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Trump Awareness Syndrome?
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