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So excited that Stephanie Fischer
@RarePOV has joined us to accelerate treatments in rare disease at@rdmd! We’re so pumped to have you in on this mission.


https://twitter.com/RarePOV/status/1206674955590606849 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The power of deep evidence in
#raredisease serves a big purpose: to ignite interest from drug researchers to actually take on a condition. Insights drive action.https://twitter.com/rdmd/status/1193936983657209857 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
this team is 7,000 kinds of awesomehttps://twitter.com/dineoutdiaries/status/1190449366697271297 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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It’s not enough to be fighting rare disease by day -
@dineoutdiaries is a volunteer at Shanti Project by night (in the little spare time she has)! I remember when we found Charlene she was about to travel the world for a year. She put that on hold to join the@rdmd mission!
https://twitter.com/dineoutdiaries/status/1179951834154168320 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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“Data standards are like toothbrushes - everyone has one, and nobody wants to use anyone else’s.”
#RWE2019Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Live tweeting from the National Press Club in DC! This is going to be an awesome discussion on using Real World Evidence to support regulatory decision making in drug development. Live webcast details below:
@rdmd#RareDisease#RWE2019 https://healthpolicy.duke.edu/events/developing-real-world-data-and-evidence-support-regulatory-decision-making …pic.twitter.com/eEqFxsQLZJ
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Excited to be featured in the top 150 most promising digital health companies - advancing drug development in
#RareDisease!@rdmd@CBinsights https://www.cbinsights.com/research/digital-health-startups-redefining-healthcare/ …pic.twitter.com/l0bK8gIiwt
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The holdouts closing down the bar... at
#2019ggsummit. Had a blast - thanks for coming!!@dineoutdiaries@onnofaber@MitoAction@rdmd@NeenaNizar@kristinacotter@livinlavidalopo#RareDiseaseshttps://twitter.com/dineoutdiaries/status/1178527775809921024 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The more patient stories we tell, the more research we influence.
#2019GGSummitpic.twitter.com/HBaBmZRM0n
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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This is why we need to build a model specific to rare disease, not adapt the traditional R&D model from common diseases: All diseases will eventually be rare diseases.
@TRNDS_UR@RareDiseases#rarediseasepic.twitter.com/EMc3XlhL65
Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Let’s talk Real World Evidence in rare neurological diseases!
#neurology#RWE#rarediseasehttps://twitter.com/TRNDS_UR/status/1169982968644952072 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
This is why we get so much done at
@rdmd#communicationpic.twitter.com/RjUWhD6y7X
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Today my mom asked me if
#fundraising for a startup involved me treating VCs to bountiful lunches and dinners and keeping them entertained.
I must be doing this all wrong.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Every year, we fly out our entire team to
@GlobalGenes because it’s one of the best opportunities to meet with all the#raredisease warriors out there.
So excited to catch up with everyone soon!https://twitter.com/dineoutdiaries/status/1167295626926673920 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
How
@rdmd comes up with new ideas
@onnofaber@exploratoriumpic.twitter.com/toYBhZ8D45Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Just re-watered half my plants when they didn’t need watering because I had my moisture meter set on “ph” and not “moisture level.” The dangers of relying too much on tech and not common sense...
#plantmomHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#raredisease isn’t a science problem. The problem is there’s no easy way for researchers to deeply characterize the disease itself (#naturalhistory). How can researchers and FDA design successful trials when this information is trapped in hospitals or just doesn’t exist?Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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