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Come celebrate World Rare Disease with us by attending the MG Educational Seminar in St. Louis on Saturday February 29th from 8:30-1pm at the Courtyard by Marriott, Brentwood. Please RSVP by February 20th to… https://www.instagram.com/p/B8B7Db8Jea5/?igshid=lv8rvnb82pd0 …
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MGA proslijedio/la je Tweet
Today is the LAST day to take part in our 10th Anniversary January Promo! Register for just $20.11. http://www.mga5k.com
#careaboutrare#rarekc#mgstrong #myastheniagravis#mgfacts#myastheniagravis#worldwithoutmg#mgatop#mga5k#mgatriplecrown#mgatriplecrownshowdown#mgarunpic.twitter.com/mOvZuws5bE
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MGA Member Monday! We're going to be sharing some of the faces of the MGA each week! Meet Shayne.
#mgakc#mgacomo#mgastl#mgaspg#mgawch#mganwa#mgankc#mgatop#careaboutrare#rarekc#mgstrong#ihaveheardofmg… https://www.instagram.com/p/B702ad6J_g9/?igshid=1p2fabd7ibwk8 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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We are excited to announce we are forming a Topeka Area Support Group! Join us for our Inaugural gathering on Thursday February 20th from 6-8pm at Beanheads coffee! https://www.facebook.com/events/840001889751557/ …… https://www.instagram.com/p/B7W0Y2MJWUE/?igshid=1mtimszfqpra8 …
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Our Wichita Support Group Leaders, Larry and Dana Paxson took to the streets for June Awareness Month educating EMT’s and Firefighters on MG. Thank you, Larry and Dana!
#mgawch#careaboutrare#mgstrong#ihaveheardofmg#rarekcHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
If you receive Medicaid, take note of this info from Amazon. https://themighty.com/2018/03/amazon-prime-discount-medicaid/?fbclid=IwAR1MUiU_4j0XvhxCscRjF2qfmKrfaAxGP7kHOtqu156hn4tHASmEkaMiFBA …https://themighty.com/2018/03/amazon-prime-discount-medicaid/?fbclid=IwAR1MUiU_4j0XvhxCscRjF2qfmKrfaAxGP7kHOtqu156hn4tHASmEkaMiFBA …
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Hello MG Community! First of all, let me say thank you again for allowing me to share my experience with MG and the journey I have been on with my health over the last 14 years. I was given the opportunity by MGA... https://www.facebook.com/81557903509/posts/10156584240633510/ …
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Also in the new edition of the MDA's Quest magazine are updates on LEMS treatments and research. https://www.mda.org/quest/article/news-lems-treatment-and-research …https://www.mda.org/quest/article/news-lems-treatment-and-research …
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It's Volunteer Appreciation Week and we have some VERY important and special Volunteers to highlight! Please join us in giving a huge thanks and appreciation to these special volunteers! We are lucky to have them and... https://www.facebook.com/mgakc/posts/10156386005663510 …
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The Muscular Dystrophy Association Quest magazine has an informative article in it's new edition about being prepared in an emergency. You can check it out here. https://www.mda.org/quest/article/be-prepared …https://www.mda.org/quest/article/be-prepared …
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Newly diagnosed? This is a great article or refresher as you... https://raremark.com/myasthenia-gravis/articles/how-to-tell-others-about-myasthenia-gravis-mg--1006?utm_campaign=MG_Newsletter_March_2019&utm_medium=email&utm_source=Net_Results&utm_content=MG_Newsletter_March_2019# …
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This Saturday, Wichita and Kansas City both have great topics and speakers coming to their support group meetings. Dr. Constantine Farmakidis, Neurologist at the University of Kansas Medical Center is speaking in... https://www.facebook.com/mgakc/posts/10156374853503510 …
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With myasthenia gravis sometimes presenting challenges with swallowing, check out these new food kits. Anybody tried them yet?...https://www.foodbeast.com/news/hormel-dysphagia-meal-kits/?fbclid=IwAR0yQFbcJrhWBCgPtEgnvX-VM7yU6nqRcrZAFwhHobVs_zMxtdM_wSQR0_8 …
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We are thrilled to be a part of Serve KC's Volunteer Fair on Saturday April 6th at Union Station! We are currently looking for volunteers to help with our 9th Annual MGA Triple Crown Showdown! Check us out at the... https://www.facebook.com/mgakc/posts/10156382134253510 …
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An insightful read on walking as your health allows as written by a fellow individual with myasthenia gravis. https://www.winnipegfreepress.com/our-communities/times/correspondent/Walking-for-our-lives-507634001.html …https://www.winnipegfreepress.com/our-communities/times/correspondent/Walking-for-our-lives-507634001.html …
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I.G. Living! recently posted about an APP to use to find out what Medicare covers. You can learn more here.... http://www.igliving.com/BlogEngine/post/free-app-shows-what-medicare-covers.aspx?j=56174339&sfmc_sub=1593768625&l=30386123_HTML&u=472264672&mid=10376529&jb=0 …
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Soliris (eculizumab) may be the most effective and well-tolerated immunotherapy for patients with myasthenia gravis (MG), according to an analysis of multiple studies....https://myastheniagravisnews.com/2019/03/26/soliris-best-immunotherapy-mg-patients-study-suggests/ …
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