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morethanmySLE's profile
Peter Morley
Peter Morley
Peter Morley
Verified account
@morethanmySLE

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Peter MorleyVerified account

@morethanmySLE

♿️ Patient Advocate-Cancer Survivor & Lupus Warrior Testified @AppropsDems/@EnergyCommerce/@OversightDems Author @OccupyDemocrats Co-Founder @HealthCareMonth

Manhattan, NY
morethanmysle.com
Joined December 2016

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    Peter Morley‏Verified account @morethanmySLE 23 Mar 2020

    🚨I take Plaquenil (hydroxychloroquine) 2x daily. People like me: MILLIONS of Americans w/auto-immune & Lupus DEPEND on this medication. What will happen to US, if there is a shortage? I've heard from people who can't refill it. Why is the MEDIA not covering this?

    10:11 am - 23 Mar 2020
    • 1,968 Retweets
    • 3,692 Likes
    • Pravesh Gaur MaryZ Jen Skelly 𝐊𝐆 𝐢𝐧 I🌻wa 𝒄𝒉𝒓𝒊𝒔𝒕𝒐𝒑𝒉𝒖𝒓𝒊𝒐𝒖𝒔🇺🇸 Cera C Denny Kiko felicidad Donna Fox
    222 replies . 1,968 retweets 3,692 likes
      1. John‏ @John15597078 23 Mar 2020
        Replying to @morethanmySLE

        Mepacrine can be a useful alternative to hydroxychloroquine for lupus according to Lupus UK. Please consider for a few weeks while docs save lives.

        0 replies . 0 retweets 0 likes
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      2. laura frost‏ @Ljafk 23 Mar 2020
        Replying to @morethanmySLE

        I have been tweeting about it constantly. If the supply dries up of this drug what will people who depend on it to live daily do?.

        1 reply . 1 retweet 10 likes
      3. B‏ @barrydextex 24 Mar 2020
        Replying to @Ljafk @morethanmySLE

        Have u tried mail-order from other countries? My mom recently ordered a prescription from India.

        0 replies . 0 retweets 0 likes
      4. End of conversation
      1.  🇺🇸DaleWillResist 📣 🌻‏ @awelab1956 23 Mar 2020
        Replying to @morethanmySLE

        MSNBC has spatters of coverage, not enough.

        0 replies . 1 retweet 9 likes
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      2. American Witch‏ @AmericanWitch7 23 Mar 2020
        Replying to @morethanmySLE

        Shortage - they will jack the price because of demand, insurance will balk at covering said increase and those who need it on a daily basis will not get it because the limited supply will get sent elsewhere or they won't be able to afford more out of pocket $$ for it.

        1 reply . 1 retweet 5 likes
      3. Tara *Wear a Damn Mask* Tisch‏ @TaraTisch 23 Mar 2020
        Replying to @AmericanWitch7 @morethanmySLE

        The price already went from less than $1 and is now upwards of $19 a pill in some places. Price gouging.

        0 replies . 1 retweet 3 likes
      4. End of conversation
      1. Tromachick‏ @LempaLyn 23 Mar 2020
        Replying to @morethanmySLE

        I take it too (for MCAS). Supply is dwindling & I can't get my script filled.

        0 replies . 0 retweets 4 likes
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      2. Mr.Peoples suggests you Decline.‏ @TheRealMrPeopl1 23 Mar 2020
        Replying to @morethanmySLE

        Because your individual plight is no different than those who are taking your medicine. It isn't going to get you sympathy if you complain that your life saving medicine is being used to save other lives,it is still lives and their need is equivalent to yours.hope you get it.

        2 replies . 0 retweets 0 likes
      3. L Tohill‏ @ltohill10 23 Mar 2020
        Replying to @TheRealMrPeopl1 @morethanmySLE

        He is speaking about people who are long-term existing users with chronic conditions, not just himself. Medication has NOT been cleared as treatment for #covid19 and people requesting and hoarding it for this purpose are wrong and jeopardizing themselves and others.

        1 reply . 0 retweets 4 likes
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      2. Laura St Denis‏ @thenurse75 23 Mar 2020
        Replying to @LMplusG @pattymchugh1212 @morethanmySLE

        Prescriptions? Sounds like malpractice.

        1 reply . 1 retweet 7 likes
      3. Show replies

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