@michellemalkin My daughter. She's autistic. They monitor her heart valves. Then double jointed/headaches
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@MitroT thank you for your feedback. are your daughter's headaches migraines? any signs of "dysautonomia?" breathing problems? -
@michellemalkin She has kept folder on all medical care. Was extremely to find diagnosis and might help you with that & coping techniques.
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@michellemalkin I believe I have it. Mitral valve prolapse, double jointed, etc. -
@sarahrstevenson any breathing problems? -
@michellemalkin no, other than during anxiety attacks -
@sarahrstevenson do they take a long time to resolve? thank you! -
@michellemalkin no, usually around 15 min. I think I get anxious when my heart beats weird and have some shortness of breath. -
@sarahrstevenson Sorry to jump in, but I occasionally get that heart beating weirdly with shortness of breath. Is that anything tolook into? -
@TarynOnthenews ask your dr. Mine has me get an echocardiogram every 3 years to monitor my MVP. -
@sarahrstevenson thank you - 2 more replies
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@michellemalkin made an awareness video about#eds hope you like it!http://youtu.be/_w4OkwLbNs4 -
@DACVanderbroeck thank you so much. the EDS community has been amazing. -
@michellemalkin thank you for sharing!#loveyourself
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@michellemalkin I have EDS type 2! Mild classicalThanks. Twitter will use this to make your timeline better. UndoUndo
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@michellemalkin my 15 year old daughter suffered horribly. Sigh. I've turned your post over to my Mn groupThanks. Twitter will use this to make your timeline better. UndoUndo
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@michellemalkin Many of those with EDS also have POTS.Thanks. Twitter will use this to make your timeline better. UndoUndo
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@michellemalkin Neice diagnosed with this approx 10 yrs ago. Rare disorder, took a long time to get diagnosed.#momtweetsThanks. Twitter will use this to make your timeline better. UndoUndo
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@michellemalkin I have EDS type 3. -
@NicoleKimberlin@michellemalkin So do I and I'm worried that if I had kids they would get it. Do your children have it or dysautonomia?
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@SaltOnMySpoon@michellemalkin My kids do not have any signs of dysautonomia. I had a bad spinal fluid leak, that most likely is to blame. -
@NicoleKimberlin oh no! I'm sorry. You have POTS? -
@SaltOnMySpoon Nope, no POTS. I have neurallly mediated syncope. It's under the dysautonomia umbrella. -
@NicoleKimberlin ugh. awful. Do your children have eds? (Sorry for all the questions!) lol -
@SaltOnMySpoon Nope no EDS diagnoses for them yet thank goodness. I'm hoping they didn't get my bad genes, just my looks lol! -
@NicoleKimberlin Lol yes you are so pretty! - 2 more replies
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