medConfidential

@medConfidential

Campaigning for confidentiality and consent in health and social care

UK
Vrijeme pridruživanja: siječanj 2013.

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  1. proslijedio/la je Tweet

    Our NCRAS patient data is being used to identify women at increased risk of breast cancer and make sure they are offered extra screening. Read more here:

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  2. proslijedio/la je Tweet

    Today is ! We'll be tweeting throughout the day to highlight the role that our National Cancer Registration and Analysis Service () plays in using data to improve cancer care. Find out more:

    World Cancer Day logo
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  3. Do cancer patients know this is how their data gets used?

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  4. proslijedio/la je Tweet

    ⏰Only a few days left to apply for our Strategy & Engagement Manager role ! 😀Work with our lovely small team 💰50k 👍Happy to chat if you'd like to find out more

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  5. proslijedio/la je Tweet
    prije 19 sati

    Really? "Most people don't want targetting stopped." says chair of the government data ethics body . I think that's a very dodgy statement.

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  6. 3. velj

    A mediocre backgrounder ahead of the future data grab by - When John Bell is better on downsides than the NGOs, there’s a problem in civil society…

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  7. proslijedio/la je Tweet
    3. velj
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  8. 3. velj
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  9. 3. velj

    You choice is this awkward because of active decisions by , and makes your life harder as it makes things easier for the staff of

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  10. 3. velj

    Here are the currently necessary steps to make an informed choice how data about you and your family is used:

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  11. proslijedio/la je Tweet
    30. sij

    I believe very much in the power of data analytics to improve healthcare. So there are positives in here 💯. But who is ensuring this doesnt just become a mass surveillance project by the western (predominantly white male) tech community of those it’s purporting to “save” ?

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  12. proslijedio/la je Tweet
    29. sij
    Odgovor korisniku/ci

    Seems like and have forgotten about administrative law (an error that is sadly far too common in public sector automation). Presumably the Human Rights Act and the Equality Act are far too exotic for them, too They should read this:

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  13. 27. sij

    our comments on the PCN plans - mostly looking at risk stratification under the new GPSoC framework (cc )

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  14. proslijedio/la je Tweet
    24. sij

    Now here's a big data challenge! I'd be interested to know where 'd place on p18, especially given the numerous references throughout the rest of the document to the domains we've been working in these past several years.

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  15. proslijedio/la je Tweet
    24. sij

    Staggering errors in AI studies on predicting premature birth. "11 of the papers mixed their training and testing data." Bumped their accuracy from 50% to... 90%. Suspect this comes from not having folk on team who understand BOTH subject area AND computational methods used.

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  16. 19. sij

    given topics in the news, here is our note to Cabinet Office on “ghost hunting and unicorn farming” in their “fraud” “profession”

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  17. 13. sij

    it isn’t. A £20k invoice is on its way.

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  18. 10. sij

    this will be fun, or terrible; probably both

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  19. 9. sij

    ‘collect it all’ seems to have reached government; here’s what we wrote when it reached the NHS…

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  20. proslijedio/la je Tweet
    2. sij

    Congrats to Google, but let’s not forgot the team from NYU who last year published better results, validated on more cases, tested on more readers, and made their code and data available. They just don’t have the PR machine to raise awareness.

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