Opens profile photo
Follow
Click to Follow MEActNetUK
#MEAction Network UK
@MEActNetUK
UK branch of global grassroots movement . Empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
United Kingdommeaction.netJoined June 2016

#MEAction Network UK’s Tweets

Powerful interview from MEAction’s Jaime Seltzer and Dr. David Kaufman. Research into ME will help people with Long COVID. Join our campaign to lobby for more research funding. Find out how here! meaction.net/2022/09/04/sam #MillionsMissing #longcovid #pwME #WeAreAllConnected
Quote Tweet
#MEAction’s Jaime Seltzer and Dr. David Kaufman gave a powerful interview for @WPR about how to diagnose and treat #LongCovid patients who are developing ME/CFS. A great interview to share for folks who are trying to figure out if they have #MECFS. bit.ly/3eMXmhr
Show this thread
3
2/3 As we heard from our speakers, there is exciting research being carried out that gives us hope. Imagine what could be achieved if we had the funding. So we need you & your followers to write to the demanding the £100million missing from ME research.
Image
25
We need the hundreds of millions of pounds missing from ME research . #MillionsMissing #LongCovid #WeAreAllConnected
Quote Tweet
Today #MECFS sufferers gathered in London to demand @wellcometrust commit £100 million towards biomedical research into #MyalgicE. #MillionsMissing numbers are growing due to #LongCovid. Red thread represents links between conditions @meactnetuk #WeAreAllConnected #spoonie
Show this thread
Emma, a white woman in her 30s with short brown hair, lies in bed on her side, holding a red thread that falls in front of her face. Text reads, 'We are all connected'.
17
Today the #MillionsMissing are gathering & speaking out to ask, beg for help. You can’t see us, as we’ve been pushed out of society by complex & chronic health conditions with no treatment I can’t be in Parliament Square, but I am with you all. please help us.
I am lying down, I look tired and dishevelled with darkness under my eyes. My hand is extended and in it is a red thread crossing from one side of the screen to the other to signify connection with everyone else in this campaign.
Quote Tweet
A woman with short hair lying in bed wearing a red millions missing top. She has a red ribbon across her pillow and her face is partly obscured by red dots for privacy and to symbolise how we are missing and harmed.
#WeAreAllConnected and some are hanging by a thread. #MillionsMissing @MEActNetUK @wellcometrust Fund Biomedical Research - don’t leave us behind for another 3 decades. Thinking of my dear friend D who had ME and died in 2020 and our mutual friend A, who is SO very severe now.
1
82