Our thanks to for joining us in Parliament Sq #MillionsMissing to support #pwME & show #WeAreAllConnected.
Help demand £100 millions missing from ME research - learn how here ow.ly/BZih50LhLcp
#MEAction Network UK
@MEActNetUK
UK branch of global grassroots movement . Empowering patients to fight for the #MillionsMissing with ME. Health equality & biomedical research now!
#MEAction Network UK’s Tweets
Our thanks to for joining us in Parliament Sq for #MillionsMissing to support people with ME.
Help demand the millions missing from ME research, starting with the Wellcome Trust - learn how here ow.ly/UlZA50LhKBP
#WeAreAllConnected #pwME
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Our thanks to for joining us in Parliament Sq #MillionsMissing to support #pwME & show #WeAreAllConnected.
Help demand £100 millions missing from ME research - learn how here ow.ly/a9Z850LfiIl
#pwME #LongCovid
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Powerful interview from MEAction’s Jaime Seltzer and Dr. David Kaufman. Research into ME will help people with Long COVID. Join our campaign to lobby for more research funding. Find out how here! meaction.net/2022/09/04/sam
#MillionsMissing #longcovid #pwME #WeAreAllConnected
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#MEAction’s Jaime Seltzer and Dr. David Kaufman gave a powerful interview for @WPR about how to diagnose and treat #LongCovid patients who are developing ME/CFS.
A great interview to share for folks who are trying to figure out if they have #MECFS.
bit.ly/3eMXmhr
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Thanks to for excellent coverage of #MillionsMissing in Parliament Square.
Follow our link to demand more research funding from ow.ly/nxTP50LglI5
ow.ly/7mNS50LglH5
#pwME #WeAreAllConnected #LongCovid
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We thank Lord Bethel for his supportive speech and joining us in Parliament Square for #MillionsMissing 2022 to support #pwME and show #WeAreAllConnected.
Help demand £100s millions missing from ME research - learn how here ow.ly/EXGN50LfjcT
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solidarity to all who risked their health at ‘s #MillionsMissing protest in Parliament Square yesterday ! i join them in calling for to fund 100 m into biomedical research for
into #mecfs and #LongCovid. we are hanging by a thread
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I spoke at Rally yesterday on behalf of those people with #ME and #CFS unable to come, and to demand more info and training for drs, more research & benefit changes.
Ruth is one of the ME missing who couldn’t come. #helloRuth
#MillionsMissing
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Thank you so much Fleur &
you speaking up and out in
Parliament and on the APPG
for #MillionsMissing is so vital!
Thanks to all there and
especially for the big #HelloRuth
Would have loved to be there!
#HelloAll #pwME
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Chronically ill people have had to protest yet again for basic support - #MillionsMissing are asking for the to back them
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#pwME gathered in London yesterday to ask to commit to spending the £100million missing from Myalgic Encephalomyelitis research on biological research into this debilitating disease. I’m joining the call for action as one of the #MillionsMissing
#WeAreAllConnected
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We thank for her speech in support of the #MillionsMissing and joining us in Parliament Square. Thank you for all your support Fleur.
Help demand £100s millions missing from ME research - learn how here ow.ly/gril50LfjuX
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3/3 If you are able to take a pic of yourself with a red thread & send it with your email please do as it demonstrates how #WeAreAllConnected. Do share your images, stories and support, tagging , and include #MillionsMissing ow.ly/aaFS50LfhJM
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2/3 As we heard from our speakers, there is exciting research being carried out that gives us hope. Imagine what could be achieved if we had the funding. So we need you & your followers to write to the demanding the £100million missing from ME research.
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1/3 Thank you for everyone who made it to support #MillionsMissing and the swathes of you that have joined in from home. Now, we need your help to raise awareness of our virtual action to lobby the demanding the funding that ME is missing. ow.ly/aaFS50LfhJM
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We need the hundreds of millions of pounds missing from ME research . #MillionsMissing #LongCovid #WeAreAllConnected
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Today #MECFS sufferers gathered in London to demand @wellcometrust commit £100 million towards biomedical research into #MyalgicE. #MillionsMissing numbers are growing due to #LongCovid. Red thread represents links between conditions @meactnetuk #WeAreAllConnected #spoonie
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"My daughter died. The system does not work."
Talking about those with severe and very severe ME. Talking about the PACE trial being a complete sham.
#MyalgicEncephalomyelitis #MillionsMissing #pwME #MEcfs
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I’m calling for more research into ME. ME isn’t just caused by viruses but can also result from concussion & head injuries. A minor injury has had a major impact on my life for over 6 years. #WeAreAllConnected #MillionsMissing #PostConcussionSyndome
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red ribbon arc at the #MillionsMissing demo at parliament square demanding more funding for research into #MEcfs
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Thanks for reporting on the #MillionsMissing event in London demanding that people with M.E are treated not with pity but with respect by giving us all the resources we need to research, understand and treat our condition. #WeAreAllConnected
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where are you #BBC100 @BBCNews...? I seem to be the only journalist here #MillionsMissing #WeAreAllConnected
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Today the #MillionsMissing are gathering & speaking out to ask, beg for help.
You can’t see us, as we’ve been pushed out of society by complex & chronic health conditions with no treatment
I can’t be in Parliament Square, but I am with you all.
please help us.
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#WeAreAllConnected and some are hanging by a thread. #MillionsMissing @MEActNetUK @wellcometrust
Fund Biomedical Research - don’t leave us behind for another 3 decades.
Thinking of my dear friend D who had ME and died in 2020 and our mutual friend A, who is SO very severe now.
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Black white to show our pain Red for our frustration #WeAreAllConnected and demand the £100 millions missing from ME research for the #MillionsMissing.#WeAreAllConnected and demand the £100 millions missing from ME research for the #MillionsMissing.
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#MillionsMissing protest in #London is today.
Dressed in red for solidarity, wishing you all the best.
Here's some links for virtual action or RT if you have the spoons!
#MECFS #meaction #activism #MEawareness
#WeAreAllConnected
meaction.net/2022/09/04/sam
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ME has been neglected, ignored and stigmatised for far too long and, as a result, hundreds of millions of pounds have been missing from ME biomedical research and this has to change .
#WeAreAllConnected, #MillionsMissing
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At 1pm today people with ME and their supporters have been invited to gather in Parliament Square, London for Millions Missing. I've made a short film in support of the event.
meandmyisland.co.uk/millions-missi
#FundMEResearch #WeAreAllConnected #MillionsMissing
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Watching the livestream of millions missing demo from my bed, hanging by a thread. I really am. This year has been the worst yet. Thanks all who are there
#MillionsMissing #myalgicE #pwME #MEcfs #WeAreAllConnected #TreatME
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According to the U.K. govt 1.1 million in the U.K. currently have Long Covid symptoms which have lasted longer than a year: a significant % (?) of these people are just ME patients with a different name.
#MillionsMissing
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Labour MP now speaking at the #MillionsMissing demo - echoing the call for more funding for #MEcfs - but saying what's needed is far more than just research including fully implementing new NICE guidelines ESP the DWP
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"The #PACETrial was a complete sham, a complete lie"
"(We need) all the people who stood in the way of that money for biomedical research being made available, to apologise loudly, for having ruined so many lives, including my daughters'"
#MEcfs
#MillionsMissing
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#WeAreAllConnected and some are hanging by a thread. #MillionsMissing
Fund Biomedical Research - don’t leave us behind for another 3 decades.
Thinking of my dear friend D who had ME and died in 2020 and our mutual friend A, who is SO very severe now.
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Todays #MillionsMissing protests. This month marks 5 years of my ME.
Picture on the left is me at 13, days before, already with shingles and beginning to disappear from the outside world.
Picture on the right is me at 18 bedridden and forgotten. Fund research and treatments!
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Thinking of all
travelling to #MillionsMissing
in Parliament Square to
join
to ask The Wellcome Trust
to fund ££ Ms for biomedical research
into #ME and #LongCovid
This is what the ££M funding graph
needs to look like:
from £0M to £100M pa.
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From my bed to yours, #weareconnected #mecfs #pwME #MillionsMissing
We desperately need research, for M.E.
The impact of this illness is devastating for those with it, and their families.
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#MillionsMissing thank you to everyone who is attending & tweeting from their beds sorry cant be there in person but hoping someone with power, fame & influence starts supporting us this year
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Quick video from #MillionsMissing today, just sending love to the ME community. Thank you so much, .
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Thank you to all who took part in #MillionsMissing today,
in person, online,
all wanting to & not able.
£MMs funds missing every year
for 30+ years.
We need
to fund quality MEcfs research:
urgently needed
to find treatment
for this generation.
#WeAreConnected
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📺Highlights of #MillionsMissing protest
1. giving an eloquent talk about the lack of support from the medical not political establishment 👏
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Live update from Parliament Square: Prof Douglas Kell discussing his research into microclots in #MyalgicEncephalomyelitis. Bet Parliament Sq hasn't seen a biology lecture like this before! 🫶 #MillionsMissing #MECFS
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One of my closest friends went to the #MillionsMissing today for me🥺😭 feel so grateful and emotional. Thank you Sophie
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