MDA USA

@MDAnews

MDA is leading the fight to free individuals—and the families who love them—from the harm of muscular dystrophy, ALS and related muscle-debilitating diseases.

Nationwide and HQ in Chicago
mda.org
加入2009年6月
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  1. 已轉推
    8 小時前

    Leading patient groups urge Congress to abandon proposed 'skinny repeal' and instead work in a bipartisan manner on health care reform

    4 則轉推 6 個喜歡
  2. 14 小時前

    Jared King is climing Mt. Kilimanjaro to raise money for MDA and ALS Awareness

    2 則轉推 8 個喜歡
  3. 7月27日

    Living with ? Help find the causes of ALS. Complete the Nat’l ALS Registry’s risk factor surveys at .

    2 則轉推 4 個喜歡
  4. 已轉推
    7月26日

    health care 'repeal only' effort fails to gain necessary votes in Senate to pass. See how your Senator voted here

    5 則轉推 8 個喜歡
  5. 已轉推
    7月25日

    On July 26th, 1990 President George H. W. Bush signed the Americans with Disabilities Act. It's been 27 years, let's celebrate!

    12 replies 222 則轉推 264 個喜歡
  6. 7月26日

    Ryan Karlin, who lives w DMD, is thriving thx to the care he receives at MDA Care Center

    2 則轉推 6 個喜歡
  7. 7月25日

    Let us help u & ur family be prepared for anything with MDA's emergency resources guide.

    7 則轉推 5 個喜歡
  8. 7月25日

    Tip: share relevant content created by others - it's authentic, engaging & is cheap. RoundTeam makes it easy to do:

    1 則轉推 1 個喜歡
  9. 已轉推
    7月25日

    MDA & leading patient groups urge Congress not to repeal the ACA w/o replacement legislation & to take bipartisan approach

    29 則轉推 25 個喜歡
  10. 7月24日

    Meet the members of Henry's Heroes an who run for Henry, living with CMD

    2 則轉推 4 個喜歡
  11. 7月23日

    Who exactly is ? Meet these spirited athletes and learn what inspires them to keep pounding the pavement.

    6 則轉推 13 個喜歡
  12. 7月22日

    Carla who lives with an NMD shares what it's like living w a disability in a world designed for able - bodied people

    1 則轉推 4 個喜歡
  13. 7月21日

    Meet Pat Sawhill, who runs w for his son Finley, who lives with nemaline myopathy

    4 則轉推 7 個喜歡
  14. 7月20日

    Should u check out this summer? Accessible travel blogger shares the scoop

    4 則轉推 3 個喜歡
  15. 7月20日

    Did u miss the DMD Treatment Update: Emflaza webinar? Find the full webinar and key highlights here:

    1 則轉推 1 個喜歡
  16. 7月19日

    Stay up to date on clinical trial opportunities that you may be eligible for.

    3 則轉推 2 個喜歡
  17. 7月18日

    Johanna Hamel shares insight into her work in comparative studies of RNA toxicity in myotonic dystrophy (DM).

    4 則轉推 7 個喜歡
  18. 7月18日

    Incredible work 😀Looks like the event was a major success!

    Our Beach Party raised over $7,000 for ! Thanks to everyone who chipped in! See you next year!
    2 則轉推 5 個喜歡
  19. 7月17日

    . in his first blog about MDA-sponsored research shares updates about glucocorticoid steroids

  20. 7月17日

    When you know is right around the corner!

    2 則轉推 7 個喜歡

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