I think you mean parents of children with rare diseases, or possibly even rare-disease parents, although that seems a bit garbled. Seems like a phrase in need of a catchy acronym.
Hey @Aetna, suddenly denying life-saving treatment to a child who has been on it successfully for 6 years is not ok. Rare parents have way too much stress as it is to deal with this. Please do the right thing.https://twitter.com/a21751248/status/1223743928098148353 …
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Also, f***
@Aetna - Još 1 odgovor
Novi razgovor -
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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If you set up a GoFundMe, I will contribute. Doesn’t fix the bigger problem but it’s all I can do.
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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@UHC same as above. Yep it's expensive, yes we have tried the generic, yes my copay is 11k, yes it's only approved for 6 months at a time so I have to start the whole process again. If I wasn't incredibly stubborn and driven........#pinksocksHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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#MedicareForAll will stop this for-profit rationing.#NotMeUsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Čini se da učitavanje traje već neko vrijeme.
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