My life and how I function. Sometimes it feels like I am silently suffering if you can understand that.
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Replying to @sadfishguy @WildPatroc
Yeah absolutely. I've had a taste of that as I've gotten "better but not enough yet"
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Replying to @maldngflgh @WildPatroc
Yes exactly. It is like im stuck there perpetually because "nearly normal" is my ceiling
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Replying to @sadfishguy @WildPatroc
What are the ways your illness manifests? I'm happy to talk about it with you.
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Replying to @maldngflgh @WildPatroc
It's funny, writing it out always makes it seems less than it is but I'll give it a shot. I have hemiplegic mixed Ataxic hypotonic CP AKA weak, relaxed muscles and trouble with fine motor but only on the left side of my body (tho residually on right)
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The biggest way it manifests is in fine motor involving my left side. For the most part I live as though I have one arm. Anything that is more complex than grasping and opening a door I must do with my right
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I struggle to button up shirts and I cannot roll up a sleeve on my arm. But additionally it means I cannot you can jump a 2-foot ledge without worrying about completely face planting and I often trip and fall over nothing
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I know it really doesn't sound like a lot but the other thing it affects is my speech and writing. I think so much faster than I can physically write or speak and it leads to a lot of frustration and mumbling or lost thoughts
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Replying to @sadfishguy @WildPatroc
This is exactly the kind of small thing that becomes a big thing with time. At least you're and handsome guy and it looks like you have a lady. Although sometimes these things are just a tease when you can't enjoy them because of your struggle.
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Replying to @maldngflgh @WildPatroc
Thank u for letting me rant and the compliments lol. I don't think I've given such an in-depth explanation in years and it feels really good. Thanks man
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No problem my friend I sympathize for sure. It's good to talk about it especially with people who understand.
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