I have the utmost reverence and respect for your struggle. It's amazing that you keep going.
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Replying to @maldngflgh @WildPatroc
If you allow a little bit of unwarranted pouring out, the hardest part is that it is so mild. Because it is not instantly visible to anyone and you could know me for months without knowing I had it unless I told you, but in my reality it is so pervasive and affects so much of
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My life and how I function. Sometimes it feels like I am silently suffering if you can understand that.
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Replying to @sadfishguy @WildPatroc
Yeah absolutely. I've had a taste of that as I've gotten "better but not enough yet"
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Replying to @maldngflgh @WildPatroc
Yes exactly. It is like im stuck there perpetually because "nearly normal" is my ceiling
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Replying to @sadfishguy @WildPatroc
What are the ways your illness manifests? I'm happy to talk about it with you.
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Replying to @maldngflgh @WildPatroc
It's funny, writing it out always makes it seems less than it is but I'll give it a shot. I have hemiplegic mixed Ataxic hypotonic CP AKA weak, relaxed muscles and trouble with fine motor but only on the left side of my body (tho residually on right)
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The biggest way it manifests is in fine motor involving my left side. For the most part I live as though I have one arm. Anything that is more complex than grasping and opening a door I must do with my right
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I struggle to button up shirts and I cannot roll up a sleeve on my arm. But additionally it means I cannot you can jump a 2-foot ledge without worrying about completely face planting and I often trip and fall over nothing
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I know it really doesn't sound like a lot but the other thing it affects is my speech and writing. I think so much faster than I can physically write or speak and it leads to a lot of frustration and mumbling or lost thoughts
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This is exactly the kind of small thing that becomes a big thing with time. At least you're and handsome guy and it looks like you have a lady. Although sometimes these things are just a tease when you can't enjoy them because of your struggle.
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Replying to @maldngflgh @WildPatroc
Thank u for letting me rant and the compliments lol. I don't think I've given such an in-depth explanation in years and it feels really good. Thanks man
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Replying to @sadfishguy @WildPatroc
No problem my friend I sympathize for sure. It's good to talk about it especially with people who understand.
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