I can't wait to wake up on the weekend and go on a hike and picnic at the nature reserve in the cold without any pain. I can't wait to do power cleans & arm accessory day. I can't wait to run in the cold with my tobagen on. I just want a baseline of normal body mechanics SO BAD.
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Yes exactly. It is like im stuck there perpetually because "nearly normal" is my ceiling
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What are the ways your illness manifests? I'm happy to talk about it with you.
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It's funny, writing it out always makes it seems less than it is but I'll give it a shot. I have hemiplegic mixed Ataxic hypotonic CP AKA weak, relaxed muscles and trouble with fine motor but only on the left side of my body (tho residually on right)
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The biggest way it manifests is in fine motor involving my left side. For the most part I live as though I have one arm. Anything that is more complex than grasping and opening a door I must do with my right
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Is it your entire left side or is it just the arm? Is there any type of training you do with it too help?
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It's the entire left side and it's really hard to describe but it's just weaker and for example I don't know how to send commands to individual fingers I can only open my hand as one. It's spatially off too, I knock things over bc I have poor awareness of space
End of conversation
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