Madeleine Ball

@madprime

Madeleine Price Ball • • Open Humans • Harvard PGP, Director of Research • open [source|data|science] • scientist • programmer

Boston
blog.personalgenomes.org
Joined September 2009
71 Photos and videos Photos and videos

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  2. Apr 13

    Announcing 6 GETy Awards. Celebrating participant-centered approaches to accelerating health advances cc

    13 retweets 4 likes
  3. Apr 13

    Very honored to receive the GETy governance award for our participant centered consent toolkit.

    9 retweets 18 likes
  4. Apr 13 Manhattan, NY

    Heads up for Bostonians! 4/25, Monday afternoon 18 interactive research studies that want to see you!

    6 retweets 4 likes
  5. Apr 7

    Nature Med points to new OA cancer genomics database modeled after , where only access restriction is no re-ID

    View conversation Hide conversation
    7 retweets 11 likes
  7. Apr 5

    Past 48 hrs I've tweeted 2 new pubs & 1 op-ed critical of NPRM & got ms review request for same. Rumor: final rule out Sept. Seems done deal

    4 retweets 3 likes
  8. Apr 5

    But when told rsch might include any of 7 examples of controversial research, stated broad consent willingness⬇️ 2/n

    1:10 PM - 5 Apr 2016 · Details
    3 retweets
  9. Apr 5

    Survey of US pop. (n=1593): 68% initially say they'd give broad consent to biospecimens rsch h/t 1/n

    8 retweets 3 likes
  10. Apr 5

    How do you explore your genome eg w/23andMe? Share with in a quick survey!

    1:27 PM - 5 Apr 2016 · Details
    3 retweets 1 like
  11. Apr 5

    Does find random ugly sexism a winning advertising strategy?

    6:30 AM - 5 Apr 2016 · Details
    2 likes
  12. Mar 31

    Great writeup on our new features: Any project can now work with our members and their data!

    9 retweets 4 likes
  13. Mar 31 Manhattan, NY

    Prototyping for : connections on badges!

    , , and 6 others
    11:27 AM - 31 Mar 2016 · Details
    10 retweets 7 likes
  14. Mar 30

    I think balancing data ownership and privacy/anonymity are crit. has 1 solution

    What barriers to can policy makers tackle? Data ownership? Privacy? Quality?Curation? Anonymity?
    2 retweets 3 likes
  15. Mar 28

    Be the first to read about the PeopleSeq Consortium and work sequencing healthy individuals

    , , and 7 others
    8:31 AM - 28 Mar 2016 · Details
    11 retweets 5 likes
  16. Mar 17

    Happy to support GET conference via at and all on frontier of

    4 retweets 11 likes
  17. Madeleine Ball followed , and
    • Ellen Jorgensen
      @FeyScientist

      Molecular biologist, biotinkerer, Genspace president, iGEM team leader, organic gardener, Zen buddhist, Alaska landowner, black belt, reader of trashy novels.

    • Genomes2People
      @Genomes2People

      Translational research program led by integrating genomic research and sequencing into and clinical practice.

  19. Mar 20

    Several of you have replied to me by arguing that no-one should ever write tweetstorms. But there are many good reasons to do so. (1/37)

    7 retweets 32 likes
  20. Mar 18 Cambridge, MA

    Advice from to his team following yesterday's Ioannidis lecture on reproducibility

    6:21 AM - 18 Mar 2016 · Details
    175 retweets 161 likes
  21. Mar 18

    Loophole may keep patients from getting their own data from initiative

    4 retweets 3 likes

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