Thx for inviting me to share these #LongCovid questions.
One of the most agonizing parts of this condition has been waiting for the world to catch up with what we know about the disease - & the abysmal lack of urgency to do anything about it. /1
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charlos
@loscharlos
San Francisco, CAJoined August 2020
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So if you have a surge where 10 million people get sick, and have 3 million clock in with symptoms at 4 weeks — but then 1 million of that cohort recover by 3 months, that’s a cumulative addition of 2 million with #LongCovid — not a decrease in 1 million lol
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This needs to be emphasized — according to , the number of #LongCovid sick after 12 weeks (formal definition of LC) is increasing across the board.
The only numbers they find decreasing are those 'sick less than 12 weeks', which obviously is going to decrease after surges
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Replying to @kathrynsbach @loscharlos and @BenMazer
The only number that declined since July 2022 is the number of people reporting symptoms less than 12 weeks after Covid (makes sense considering number of the UK reported Covid cases went down).
The number of people with long Covid over 12 weeks, 1 year, 2 years, INCREASED.
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The only number that declined since July 2022 is the number of people reporting symptoms less than 12 weeks after Covid (makes sense considering number of the UK reported Covid cases went down).
The number of people with long Covid over 12 weeks, 1 year, 2 years, INCREASED.
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I was got covid on 6 Mar 2020, and, despite starting to feel sick, I went running on 8, 14, 15, 17 Mar. After I thought I had recovered, I went running again in May. Then—I didn't run again for a long, long time. Why did no-one tell me exercise was a risk factor for #LongCovid?
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Multiple places in Southwest China's Guizhou Province decided to cancel long-distance running requirements, part of the PE exam, for the high school entrance examinations this year, considering the impact that COVID-19 might still leave on students' health globaltimes.cn/page/202302/12
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Biomarkers in #LongCovid: A systematic review:
"Our study found significant associations between specific biomarkers & Long Covid symptoms. Further investigations are warranted to identify a core set of blood biomarkers that can be used to diagnose."
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One of the more promising ones for sure. Only N=23 case-controlled and 1 to 6 months post-infection, but look at this figure:
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Hi all, we're recruiting for another #LongCOVID trial, but we need to tap our FULLY RECOVERED or NEVER INFECTED community for this one. If you know anyone who fits this description, let us know! prcovid@mountsinai.org
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1/🧵Your brain “on COVID”🧠
Let’s integrate >20 studies on #LongCOVID neuropathology
My 24 y/o patient explained: “I don’t have a future because I can’t think anymore.”
Let’s talk:
Autopsy Studies
Viral persistence
Brain Size & Disability
Recovery & Hope
H/T pic 👁️ tw 13
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Long COVID Has Never Been Taken Seriously. Here’s Where It Left Us. We need a public health plan for Long #COVID.
@sophiehh14 is only 28 and one of many disabled from the pandemic. Listen to this saga. HT also @loscharlos on #LongCovid advocacy. thetyee.ca/Analysis/2023/
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I think that we don't talk about microclots enough.
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Highly recommend reading & sharing: COVID can damage your heart. Not talking about it is supercharging anti-vax conspiracies
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Replying to
Why don’t doctors have an urgent call to action and speak out? Why don’t doctors help convince their patients by wearing good masks & not having maskless conventions? When will media reporters cover this?
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“Any illusion that medicine and politics are, or should be, separate spheres has been crushed under the weight of over 1.1 million Americans killed by a pandemic that was in many ways a preventable disaster.”
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Thanks to the Long Covid Sessions Podcast for interviewing me!
We talked about the various manifestations of #LongCovid #reinfection and so much more.
Link below.
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So excited to release this @SessionsTlc with @zalaly. We look at his massive @DeptVetAffairs study nature.com/articles/s4159 and talk about his amazing knowledge of all the work being done in #LongCovid.
podcasts.apple.com/gb/podcast/tlc
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So excited to release this with . We look at his massive study nature.com/articles/s4159 and talk about his amazing knowledge of all the work being done in #LongCovid.
podcasts.apple.com/gb/podcast/tlc
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A long list of #MECFS biomarkers.
H/T 🙏🏾
You could do with having a look
Neither ME nor #LongCovid are psychogenic.
This is not a matter of opinion.
Babbling ‘mind body’ incessantly won’t change that
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"we have treated six of these [#LongCOVID] patients with high-dose immunoglobulin so far, and all have had a significant to remarkable benefit"
Read the article here: frontiersin.org/articles/10.33.
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To those intent on psychologising #LongCovid & #MECFS because ‘there is no biomarker’- let me tell you something as a senior Dr. Many diseases don’t have biomarkers & diagnosis is clinical. Take asthma for example. Symptoms vary between patients. 1/n
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Let’s try to get enormous numbers of responders with #LongCovid and #mecfs for this survey. has been asking all of the right supplement questions for the whole pandemic and we will be watching the results of this work closely for treatment targets in our clinic 🙏🏻
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Hi everyone!
I am very excited to announce that I have finally completed a massive #ME/CFS & #LongCOVID treatment survey entitled "TREAT ME"
If enough people respond thoughtfully, I’m confident we may push research in the field forward!
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surveymonkey.com/r/TREATMEANDLC
If enough people respond thoughtfully, I’m confident we may push research in the field forward!
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Hi everyone!
I am very excited to announce that I have finally completed a massive #ME/CFS & #LongCOVID treatment survey entitled "TREAT ME"‼️🎉🤩
If enough people respond thoughtfully, I’m confident we may push research in the field forward!🏇
🧵1/3
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Hey , & — in all seriousness — this is the legacy you’re looking at.
Clearly nobody is going to forget what you published, but still time for your contributions to be a force for good — rather than be remembered for its current stain.
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The embarrassing & deeply sad story of Casper Schmidt, an AIDS denier who published an article in 1984 saying AIDS was psychosomatic.
In 3 decades, there will be articles like these about the individuals saying the same about #LongCovid. History repeats.
discovermagazine.com/mind/the-man-w
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IVIg seemed helpful in these patients with #LongCovid. Most had immunoglobulin deficiency. (Which I check in some of my patients).
IVIg is so hard to get covered & same thing happened in this case series.
frontiersin.org/articles/10.33
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Long-term high-dose immunoglobulin successfully treats Long COVID patients with pulmonary, neurologic, and cardiologic symptoms
#longcovid
frontiersin.org/articles/10.33
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Replying to
Also: both Visser's and Novak's teams have independently found reduced orthostatic cerebral blood flow in Long Covid (which Visser et al has previously studied at scale in ME👇🏽).
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In addition to making sure you let everyone you know the is a categorically intellectually defunct outlet publishing articles from literal modern day AIDS denialist — remind & they still have time to correct the record.
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There are hundreds of millions of Long Covid patients and up to 4 million who left their jobs in the US alone.
What she imagines is some kind of M Night Shamalayan movie where they all has some kind of psycho-social breakdown at once, inc people like movie star Colin Farrell.
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All else aside, insisting that science of Long Covid, ME/CFS & related diagnoses is settled is nonsense. There isn't a single established/replicated biomarker in either. Plenty of inconclusive findings, all over the map. Role of psychosocial factors raised in research frequently twitter.com/r_prior/status…
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I've offered from to explain, as a neurologist specializing in #LongCovid and who also has patients with #FND, the difference between two disorders. She can make things right by understanding where she was wrong. Refusal and denial breeds ignorance.
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All else aside, insisting that science of Long Covid, ME/CFS & related diagnoses is settled is nonsense. There isn't a single established/replicated biomarker in either. Plenty of inconclusive findings, all over the map. Role of psychosocial factors raised in research frequently twitter.com/r_prior/status…
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Starting beef with stigmatized bedbound people is actually so funny to me. Why don't you go to the local nursing home and pick on them for a while, Natalie, shake up your act
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All else aside, insisting that science of Long Covid, ME/CFS & related diagnoses is settled is nonsense. There isn't a single established/replicated biomarker in either. Plenty of inconclusive findings, all over the map. Role of psychosocial factors raised in research frequently twitter.com/r_prior/status…
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Psychosocial factors are often “raised” in research until illnesses are better understood — MS was once seen as psychological. You’re on the wrong side of history here and causing genuine harm.
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All else aside, insisting that science of Long Covid, ME/CFS & related diagnoses is settled is nonsense. There isn't a single established/replicated biomarker in either. Plenty of inconclusive findings, all over the map. Role of psychosocial factors raised in research frequently twitter.com/r_prior/status…
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It's very clear the general public still holds the belief that doctors can treat Long Covid. Without fail, when I post vitals, sweet people encourage me to seek health care, because they actually believe we will receive the care we need.
We don't. They don't help us.
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HOLY FUCKING SHIT.
I finally found something to (somewhat) mask my #CovidTinnitus . No other color noise (white, brown, pink, blue, other frequencies of purple) has even come close to drowning out a fraction of my sound. #LongCovid #NotRecovered
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Just a reminder — we now have Wall Street private equity firms highlighting #LongCovid as the main reason for current wage inflation.
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“The bottom line is #LongCovid is why the labor force participation rate has not recovered to pre-pandemic levels, even in a situation with solid wage growth," wrote Torsten Slok, chief economist and partner at Apollo Global Management cnn.com/2023/02/03/inv
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“I think that's what's so unclear about #LongCovid & potentially concerning about those numbers is that we certainly know some people recover, but most haven’t” said Dr. Sarah Jolley, researcher & medical director of the UCHealth Post-COVID Clinic
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It's been quite something watching #LongCovid minimisers the past 2 years dig themselves into a hole, and as biomedical finding after biomedical finding emerges, seeing them keep digging rather than pull themselves out. They'd rather bury themselves than admit they were wrong.
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Replying to
My manager got long covid. Then her step mom was hospitalized with covid, recovered, but can no longer function without help so had to move in with them. So my manager had to go part-time for both reasons. Most of our team doesn’t know this. How many others face such problems?
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Hey , & — in all seriousness — this is the legacy you’re looking at.
Clearly nobody is going to forget what you published, but still time for your contributions to be a force for good — rather than be remembered for its current stain.
Quote Tweet
The embarrassing & deeply sad story of Casper Schmidt, an AIDS denier who published an article in 1984 saying AIDS was psychosomatic.
In 3 decades, there will be articles like these about the individuals saying the same about #LongCovid. History repeats.
discovermagazine.com/mind/the-man-w
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It’s going to be even more bizarre, because this time around the author of the analogous LC article works for TAG.
Quote Tweet
The embarrassing & deeply sad story of Casper Schmidt, an AIDS denier who published an article in 1984 saying AIDS was psychosomatic.
In 3 decades, there will be articles like these about the individuals saying the same about #LongCovid. History repeats.
discovermagazine.com/mind/the-man-w
Show this thread
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The embarrassing & deeply sad story of Casper Schmidt, an AIDS denier who published an article in 1984 saying AIDS was psychosomatic.
In 3 decades, there will be articles like these about the individuals saying the same about #LongCovid. History repeats.
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Just a reminder — we now have Wall Street private equity firms highlighting #LongCovid as the main reason for current wage inflation.
Quote Tweet
“The bottom line is #LongCovid is why the labor force participation rate has not recovered to pre-pandemic levels, even in a situation with solid wage growth," wrote Torsten Slok, chief economist and partner at Apollo Global Management cnn.com/2023/02/03/inv
Show this thread
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