Lenore Shirley

@lenore_shirley

Writer. Storyteller. Healthcare Advocate. Getting on my own nerves with MS since 2013. On a mission to help others tell their stories and feel heard.

New England
medium.com/@lenore_shirley
Joined July 2013
6 Photos and videos Photos and videos

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  1. Pinned Tweet
    27 Feb 2014

    Got MS? Don't know about you but so tired of studies that discuss diff. between *healthy* people and those w/MS. Does MS = not healthy?

    5 replies 5 retweets 14 likes
  2. May 10

    Most of the time I try to see glass as half full. But also see reality - 2nd most $ chronic ill

  3. May 10

    Four years ago I was admitted to hospital for tests & diagnosed with Multiple Sclerosis. On outside I'm fine, but I feel some progression.

    2 likes
  4. May 10

    Good piece on hidden costs of MS:

    1 like
  5. May 8

    My very best to you and your family. This is why we need to make sure that we keep our voices loud, clear and strong.

    My wife is leaving her job to care for me at home. Proposed healthcare changes concern me. Hoping it all works out.
  6. May 4

    My pre-existing condition and I are having an anxious day. (I didn't choose to get the 2nd most expensive chronic disease.)

    2 retweets 2 likes
  7. Apr 26

    This is spot on. (Sadly.) Fortunately, most MS patients don't have all of these problems at the same time.

    4 likes
  8. Apr 25

    Lovely. A former supervisor - in the hubbub of a chaotic commute - used to take turns reading Mary Oliver with a dear friend.

    Mary Oliver.
    1 like
  9. Apr 20

    Which Type of Exercise is Better for People with MS? for

  10. Apr 6

    478 people lost their lives to substance abuse in NH in 2016. Adding my voice to the chorus advocating for help for those who need it.

    Dean LeMire & are raising their today
    1 like
  11. Mar 9

    Concerned about the heroin epidemic in NH - and health risks of dirty needles:

  12. Mar 8

    Good advice: How To Explain Being Fired

  13. Mar 8

    I don't think I'll ever look at a restroom sign the same way...always a cape.

    Shoutout to all the moms, daughters, and sisters around the world. You are strong, and you are important. 💪🏼💪🏾💪🏿
    2 retweets 10 likes
  14. Mar 8

    Been noticing that my own inner dialogue is a battle btwn feeling confident and a shaky voice. How bout you? What helps you feel confident?

    2 replies
  15. Mar 8

    "Pity gets in the way of our rights" - the late Stella Young in amazing essay on disability to her 80 year old self:

  16. Mar 7

    Agreed..so important to choose our words carefully.

    Changing the way we talk addiction is one of the most effective ways to reduce stigma.
  17. Feb 6

    I don't use bots and don't recommend them. I do; however, find this fascinating:

  18. Jan 31

    Thank you for sharing your MS story - and good luck with your walk fundraiser...getting ready to start this year's campaign, too!

    I want to thank Charley for giving me the strength to make this video. You can thank her too by watching the video
    1 like
  19. Jan 31

    Plegridy day. Last two injections in the tummy - it's leg time but worse side effects. Any other patients have advice?

    2 replies
  20. Jan 26

    Next time I have a runny nose, I may go for this one...

    Drug May Reverse Chronic Vision Damage Caused by via
    1 reply 1 like
  21. Jan 21

    Taking a break from tweeting about today to -> go local . This is worth a read:

    2 likes

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