Tweets
- Tweets
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What do I put in a NICU care package? Find out here -> http://ow.ly/COyTm #preemies #NICU
Home-Cooked Meals Promote Children’s Health, Family Togetherness http://ow.ly/COyKQ
RT @CorDynamics "#FDA approves therapy for Pompe a rare genetic disease weakening heart and skeletal muscles" http://ow.ly/A1reR
Adorable Photo Series Shows Preemies Sleeping Safely, Dreaming Big http://ow.ly/CKF9o http://ow.ly/i/7dJrF
Has anyone used Elderberry syrup to avoid colds and the flu? Answer here -> http://ow.ly/CKEYD
Governor Corbett Signs Bill Expanding Newborn Screening Requirements http://ow.ly/COy6x #fabry #pompe #krabbe
Kids are re-defining the face of spina bifida with viral video http://ow.ly/CKE58
Pediatric Medical Geneticists Look to Genes to Unravel Mystery Illnesses in Children http://ow.ly/CKDTY
Taking small steps to cure Prader-Willi Syndrome http://ow.ly/CKDId
NORD launches 1st patient organization for 1 in million with #raredisease #LPLD @LPLDeficiency http://bit.ly/1tqRETt
An Interview with #HLHS Mom & Blogger Lisa Trent http://ow.ly/CKEnE #CHD http://ow.ly/i/7dJeS
Five Topicals Commonly Used By Patients With Epidermolysis Bullosa (EB) http://ow.ly/CvRVi
First responders learn about Prader-Willi Syndrome http://ow.ly/CvPRl
okay so the older i get, the more i love formula 1... oh and my kids too! xx
When Your Daughter Can’t Stop Eating: Raising a Child with Prader-Willi Syndrome http://ow.ly/CvFNb
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