I remember how my mom had to learn to care for my grandma's feeding tube—this was after grandma had a stroke. My mom soon learned to make sure that the line was clear, that the bag was full of food, etc. Her penalty for failure was hearing that annoying beep, beep, beep…
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My mom got so good at it that a visiting nurse figured a way for her to get paid for it. This is how she supported three kids in the late 90s. (That, and a few side-hustles.) It's also how she got to spend so much time with grandma in the end.
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Decades later, those same skills are helping my mom in her own fight against cancer—with chemotherapy, infusions, injections. Yes, disability is a skill, and you get better at it. The more we ignore our experiences of disability, the more we forfeit those skills.
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