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Kendra D. Riley
@KendraDawning
Kendra D. Riley’s Tweets
Happy 2nd Re-Birthday Keira! We are back in #Italy for the anniversary of the day she received #genetherapy and officially began living a life free of #MLD! 🥰🎉🍨🇮🇹
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Milano here we come! 🇮🇹 Hard to believe this will be Keira's 2-year post #genetherapy check up! Time has flown by watching this little girl grow!
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Harry and Meghan 'worried' they are being 'eased out' of Royal Family -
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A great feature on #AZwine by , highlighting and their three tasting rooms - in #Scottsdale, #Cottonwood and #Willcox - in the latest issue of Paradise Valley City Lifestyle! #wine #winetasting
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In the October 2022 issue of Paradise Valley City Lifestyle, view photos from our Mid-Year Meeting at ! 🙌🏼💚🤍💟🙌🏼
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Happy 40th Birthday to this amazing guy that I get to spend life with!! What you have been through and accomplished is pretty amazing and the girls and I are beyond lucky to have you!! Can't wait to see what this next decade brings! We love you so much !! ❤️🎉🍾
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A quick walk past #BuckinghamPalace last night where crews were still cleaning up. #QueenElizabethII 🇬🇧
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Next up on my agenda: newborn screening for #MLD! Now that there's a treatment in the US it is a MUST that we save these children before symptoms begin! Maybe and could help me out? 🙏🏼😊
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When you get a law passed during a pandemic you don’t get the typical experiences. Today part of that was redeemed - @GovernorTomWolf ceremoniously signed #SB983 and I told him it’s already saved at least four lives. #NewbornScreening #Krabbe
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Did you know that September is #LeukodsytrophyAwareness month?
For many Americans living with this rare genetic disorder, help is an ocean away. Here's how Goldwater's groundbreaking #RightToTry expansion offers hope and a chance at a better tomorrow: bit.ly/3f2CbaU
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Congratulations to @GoldwaterInst, winner of SPN's 2022 Powerful Storytelling Award! Learn more about SPN's Communications Excellence Awards and how Goldwater's effective use of storytelling helped one teacher's plight have a national impact. #SPNAM
spn.org/blog/the-2022-
Imagine you or a loved one is facing a terminal illness and the gov't holds the power to approve a promising treatment—or to stall while your life is on the line.
Unfortunately, it's reality for thousands.
Read from about our solutions:
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‘All I want to do is stay here for the rest of my life!’
Kinsey Schofield speaks to Dan Wootton about her ‘heartwarming’ experience of being in the UK on the day of Queen Elizabeth II’s state funeral, saying she felt ‘proud’.
💻 GB News YouTube: bit.ly/3vAYaw0
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The modernization of #IT has companies realizing their digital infrastructure is antiquated.
Client BK Global Solutions shared with the how they're helping modernize this for everyone from medium sized businesses to Fortune 500 companies.
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Tune into on tonight for special coverage. We will be live outside of Buckingham Palace - stream here… youtube.com/c/gbnewsonline
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Quick trip to #Atlanta to speak at 30th Annual Meeting with the about #RighttoTry 2.0 and how other state's can implement this life-saving legislation.
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Summary of Monday's front pages (19/09/2022) #TomorrowsPapersToday #FrontPages #MondaysPapers #Headlines
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Kate wears jewellery that once belonged to Queen Elizabeth II in touching tribute to former monarch
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The turns our life has taken in the last two years are still surreal. Look forward to sharing more about it, and how we're continuing to help others, on stages in Atlanta and London this coming week!
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Today, parents of children with a #cALD diagnosis now have #hope for their future, thanks to the accelerated FDA approval of 's Skysona #genetherapy! 👏🏻🤗❤️
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NEXT WEEKEND we'll be pouring at the Sedona Winefest along with 24 of our fellow #azwineries! 🍇🍷The Sept 24-25 event features wine tastings, food, entertainment + local artisans. Sedona.biz has the details + ticket link below. 👇
sedona.biz/13th-annual-se
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Major #ProudMom moment! 🤗 Riding a bike is yet another thing we never got to see Livvy do because of #MLD so it beyond amazing to see it with Keira! 😭❤️👏🏻 #genetherapy #miracleshappen #RareDiseases
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There are some great fall #festivals coming up that are featured in , including a Dawning PR fave: on Sept 24-25! 🏜🍷sedonamonthly.com/2022/fall-for-
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An outtake from the cover shoot at today, featuring the Executive Committee for the 63rd Annual Phoenix Heart Ball! 🤩
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Member of Eliances, Kendra Dawning, Dawning Public Relations and a rare disease advocate. Her boutique PR agency helps clients elevate their communications to their target audiences on a local, regional, national and international level.
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Queen Elizabeth II's historic reign will forever be remembered. 🤍 Look back on her extraordinary royal life in pictures:
eonli.ne/3quRlIp
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The most common forms of #Krabbe, #MLD, and #ALD appear in early childhood, but there are forms of each that can appear even in adulthood.
#NewbornScreening identifies the childhood forms of these because they are the most severe.
#Leukodystrophy
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I'm so excited to be on the panel for this discussion with the FDA, doctors and scientists across the nation to share how #MLD impacts the lives of patients and caregivers, and how #genetherapy truly saved our daughter's life!
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Did you know September is #LeukodystrophyMonth?! Learn more about the cause or donate to help find treatments for leukodystrophies like #MLD at ULF.org. 💙
Any donation over $20 during the month of September will receive (1) free light-up blue awareness bracelet!
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Leonardo DiCaprio every time one of his girlfriends turn 25
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470 #BuildtoRent units are coming to #CasaGrande! shared more on this news after client just closed on 39 acres:
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Oh these girls of ours! 😎💕
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The Riley sisters showing up to Governor @DougDucey's office to help save lives like 
Right to Try 2.0 is now LAW in Arizona! Read about this groundbreaking legislation here: bit.ly/3Axg8Sg
Right to Try 2.0 is now LAW in Arizona! Read about this groundbreaking legislation here: bit.ly/3Axg8Sg
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With and others setting up shop in #CasaGrande it's quickly becoming one of the fastest growing cities. And client just bought 39 acres to build 470 #netzeroenergy units. 🙌🏼 bizjournals.com/phoenix/news/2
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