It might be a good idea to put together a dossier on the views of NICE review panel in terms of 1.causes of ME/CFS 2.preferred treatment..
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3. Biases 4. Conflicts of Interests and 5. Views on controversial CBT and GET treatments
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Are there ways in which we/you can help patient/layperson representatives and prepare for the guidelines review?
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please email me any responses to items 1-5 above and I’ll try begin putting something together put need help to do dossier
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It needs to be emphasized that despite not saying it directly in all their research, the psychosocial researchers have written plainly and clearly that they believe it's psychosomatic.
That bias alone makes them unfit. It's a belief that is contradicted by evidence.
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that is precisely where the "false illness beliefs" are.
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Also anyone with a vested interest in the guidelines remaining the same !
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I haven't got the time personally, as you know - I guess we could ask others if they could help - in the group etc?
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