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Its ME Matina
@justask
#MyalgicE Patient Advocacy 4 better treatment & cure. UR life/dreams are gone before ur eyes! Federal Advocacy Research Education & Funding #Dysautonomia
USAJoined July 2007

Its ME Matina’s Tweets

Apparently, this is an ironic joke aimed at mocking Veterans. Vets across Nevada and the entire country have had their pain medications discontinued in forced opioid tapers that lead to destabilization. It’s one of the reasons the Veteran suicide rate is so high.
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Living with pain, whether acute or chronic, can be challenging. Your VA medical team can suggest treatments, from medication to non-drug therapy. @VAResearch continues to search for new ways to help Veterans manage pain. research.va.gov/topics/pain.cfm
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I'm working on a piece today that's a reader's guide for disability coverage: how to recognize the good stuff and how readers can respond. One idea: the best stuff is usually written by . Readers can respond by amplifying stories like his today on #mecfs & #longcovid.
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🚨I wrote about ME/CFS (chronic fatigue syndrome). The US has millions of people with it & maybe two dozen docs who specialize in it. This medical crisis needs urgent attention, esp. now COVID has hugely increased the number of long-haulers. 1/ theatlantic.com/health/archive
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Thanks to for this article on #MECFS, #LongCOVID, & the loooming clinical care crisis due to decades of neglect of infection-associated complex chronic disease. Yong spoke to the clinical community's luminaries to produce a well-rounded article.
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🚨I wrote about ME/CFS (chronic fatigue syndrome). The US has millions of people with it & maybe two dozen docs who specialize in it. This medical crisis needs urgent attention, esp. now COVID has hugely increased the number of long-haulers. 1/
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The new guidelines explicitly *prohibit exercise* in #LongCovid patients with post-exertional malaise/post-exertional symptom exacerbation. #MedTwitter and others, please internalize this!
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Finally! New @WHO guideline specifies: NO EXERCISE THERAPY for #PostCovid patients if they suffer from POST-EXERTIONAL SYMPTOM EXACERBATION. Hope this will protect more patients from becoming bedbound by wrongly applied #rehab measures like GET Please RT For more info see 🧵⬇️
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Yes! Thx, . In my earlier tweets I missed recognizing some of the good folks who put their bodies on the line for us. Each one of you is a 🌟STAR!: , , , Pls tell me who else am I missing?
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Replying to @Rivkatweets and @r_prior
There is also Matina, JD, Therese, me, and folks from the Long COVID community. Everything is a blur so just recognizing those right now.
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needs to FUND #LongCovid research! How can the NIH not fund research on something afflicting millions of Americans?
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Why I'm Getting Arrested on Monday at the White House, and How You Can Help: Join the first national civil disobedience protest for #LongCOVID and #MECFS , or take action at home to support! thecrankyqueer.substack.com/p/why-im-getti
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Standing in solidarity with #MillionsMissing today. I am so grateful to those of you able to take action in person or from home today. I’m resting this afternoon…like so many days that feel stolen from my life due to #LongCovid & #ME declare an emergency now. 💖
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Hello, #MillionsMissing! I am in solidarity with those protesting in DC today! Millions of people are fighting for their lives. Prouder than I can say to be behind you, working to keep the home fires burning. @POTUS must heed our call. #LongCovid #MECFS @MEActNet.
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